The life story of Annabel Grace Shelander... living with Trisomy 18, the struggles along the way, and the triumphs that she continues to have.
Wednesday, April 22, 2009
Can we please go home....
We will wait for the doctors to round this morning. Annabel ate well yesterday and tolerated her formula. Her mornings seem to be so lazy but her afternoons great. My suspicion is that she is not sleeping at night with this new BiPap, but the sweet girl she is just lays there. I am going to ask the doctors today how they think her night went on the BiPap vs. telling them from my perspective. I do think things improved a bit from the night before. She needs another sleep study very soon but for some crazy reason can't get one until Aug. 26th. I say there is a big problem here. I am really wishing to go home today. I think I just need to be close to home and take care of business. Actually today, I have been married for 29 years. I am surely glad I looked at my calendar to see the date. Sometimes I don't even know the day of the week much less the date. Even though many couples married this long have their bumps in the road, we have had our share but will continue to work through these and be here for many more to come. Happy Anniversary Mel! I do wish Mel read the blog then I could hint at a dinner out! I guess just a dinner back near home would be great today!
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7 comments:
Here's hoping you two get to go home today. I know it's corny but...there's no place like home. Happy Anniversary to you and Mel. 29 years...that is an accomplishment. Hugs to you and Annabel.
Brenda
Hoping and praying that you make it home VERY soon! Happy Anniversary! Love all the pictures of sweet Annabel! Cool orange blanket too!
Praying you get to go home today! Happy Anniversary also, and many, many more!
Oh, Annabel, you are so beautiful in your orange for Stellan. What a precious girl you are and I am praying that you will be home very, very soon. Your nurses and therapists there will surely miss you when you go home, but they will be glad that you are so much better!
Cathy HAPPY ANNIVERSARY!!! You and Mel are obviously an amazing team. Just look at your beautiful family! Congratulations to you and Mel and hoping that you get the dinner out really, really soon!
Love,
Kathy
Happy Anniversary!!! 29 years in amazing!!! Glad little missy is doing better too!!!!!!! :) :) :)
Happy Anniversary! We have just celebrated our 30th (last 31 March), so are a year ahead of you.
There will be some romance tonight at the Shelander abode!!! :)
Glad you gals are headed home!
NO SLEEP STUDY UNTIL THE 29th????? ARE THEY CRAZY???? I think that is the craziest thing I have ever heard. With all the documentation they have on all her problems you would think that no doctor would want to take the liability of sending her home without another sleep study. She should be moved to the front of the line for goodness sake! They do not even have "evidence" of how she is really doing on the BiPap without a proper study. Ok, I will shut up now...
Happy Anniversary! Happy Homecoming!
Love,
Lisa
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