Discharged...

We are home and at this time we are not on TPN at all. We are working on her feed and we must be very disciplined to make sure she gets all she needs. They say she has no room to play with. We must get it all in. If she begins to vomit or not tolerate feeds then we will have to go back to TPN. They say she can dehydrate very fast. We will take one feed/one day at a time. Thank u for continued prayers.

She is out...

Annabel is out and her PICC line is in place. Depending on how she tolerates her continuous night feedings we should be going home tomorrow. She also had her eye exam and it shows no bundles of the yeast behind the eyes. There is so much that I am thankful for concerning this hospital stay. One of which is the faithful readers.

Just going in...

Please keep Bella in your prayers. They are having to do the picc line under general anesthesia instead of sedation. She was suppose to go in at 10 but just now going. We are also praying for them to be able to get good access. They all know her and they comment on how much trouble she is to find good veins. Thank u...

PICC line tomorrow...

We didn't make the cut for today to have her PICC line put in, so we are definitely on the schedule for tomorrow. We opted for the PICC line due to she would only need conscious sedation and not have to undergo general anesthesia again so soon. The other possible good news is that she may not be going home on TPN at all. This is an answered prayer! She is basically tolerating the feeds as well as can be expected. She has some discomfort, but she was uncomfortable on the TPN for other reasons. They risk for Annabel are so high to have another central line. Yes, the PICC is a risk also but we are hoping that putting this in will let us go home and finish the two antibiotics she is on, give us time to make sure her feeding will work without having to get back on TPN.
With all this said, we want to thank everyone for all their prayers and offering to do things for us. Annabel and my family have some faithful prayer warriors working overtime for sweet Annabel. Also, praises and thanksgiving for Annabel coming through this blood infection once again. The doctor is quick to remind us that she may not be so lucky the next time. We know that their is only one person who know that, He is the Almighty Physician!
I will close with some pictures from today. One of them where she is wearing her beaded necklaces that her sisters each made, she is tired. She is still weak from the infection and last time it took several weeks for her to fully recover.
The other pictures with the little stuffed dog and the ball are amazing to us. Annabel hasn't really ever wanted to play or hold much of anything in her hand except for her pacifier. But lately she reaches (even with both hands), holds, tugs at things. I have enjoyed just sitting here the last couple days with such enjoyment that she can play and entertain herself with her toys.

Annabel's New Room

Yeast free and full of life, Annabel is definitely ready to get home to her new room! She has a new friend that was kind enough to use her talents to transform Annabel's room into a collage of colors and life. Ashley took bare white walls and turned them into a playful area that Annabel loves to hangout in. Below are photos of Annabel with her special friend and her new room. We are thankful to have people like Ashley in our lives that are able to bring a smile to Annabel's face.

























UPDATE:
Well, the team made their rounds tonight and have scheduled for her to get a PICC line tomorrow. This is not for certain that it will happen. From what I understand, it places us in line to be scheduled for tomorrow depending on how many other procedures are ahead of her. We are going to continue working on the feeds in hope that she will tolerate the volume in her stomach. The necessary staff will begin to get her meds, antibiotics, formulas, supplies, and equipment setup from the different companies so that we can finish the antibiotics from home. If all goes well, we should be able to head home by Wednesday at the earliest. Thank you all for your prayers. They continue to carry Annabel through these nasty infections and terrible antibiotics. Thanks to all the doctors and nurses back home and here in Houston who continue to work with me and look outside the box for solutions and not get discouraged.