Today we returned to the 12th floor. I don't think I was prepared for the emotions that hit me. The first two doctors who came to visit after seeing her name back on the board commented on how fast and how impressive her crashing was. after being moved to ICU for four days in a row we had to talk to different doctors about how far and what we wanted to do for Annabel. we were talked to at length about her three failures and that would be it. The last 11 days are a blur and sometime really don't see real. When Tara came by the hospital this evening she mentioned the same exact thing about arrive last Monday afternoon to a room and hallway so full of doctors working on her. She also said what really happened but I just don't want to think that deep just yet. She is with us and I want to not waste anyway not being grateful.
We are in a regular room being monitored on oxygen. She is been weaned off the fentynal/versed and having some withdrawals. She is being given Ativan which helps. They are not beginning feeds due to the large dilated bowel loops and sounds like with the weekend we won't be dealing with it either.
The life story of Annabel Grace Shelander... living with Trisomy 18, the struggles along the way, and the triumphs that she continues to have.
Friday, September 23, 2011
Thursday, September 22, 2011
Extubated...
Yes she was extubated and still doing well! I think back a week ago and we were all here because they thought Annabel wouldn't pull through. Through Annabel, I continually feel blessed. Blessed by all you who love her, pray for her and celebrate her sweet life. Blessed because God has allowed us more time to be with Annabel here on Earth. I could never begin to deserve what we have been given through her sweet, sweet life.
Updating my last update...
Updating my last update:
Ok enough of this roller coaster ride. Surgery is going to reevaluate with xrays in 6 hours. The head critical care doctor really doesn't think she will be going to surgery today and she feels we need to try to begin intubation. So I maybe holding my sweet angel baby by this evening. An answer to prayers
UPDATE:
The night was long and hard. She had more versed and fentanyl than ever. The say she has ICU psychosis, ugh. 4 nights of no sleep, although she can sleep daytime. We were hoping for extubation this morning but with a chest xray it seems she will be heading back to surgery. They are thinking somewhere she has a perforation. I am quite sure I will never be given more than I can handle, but with lack of sleep my emotions make me wonder. All I want is to hold her and let her know I how much she is loved!
Ok enough of this roller coaster ride. Surgery is going to reevaluate with xrays in 6 hours. The head critical care doctor really doesn't think she will be going to surgery today and she feels we need to try to begin intubation. So I maybe holding my sweet angel baby by this evening. An answer to prayers
UPDATE:
The night was long and hard. She had more versed and fentanyl than ever. The say she has ICU psychosis, ugh. 4 nights of no sleep, although she can sleep daytime. We were hoping for extubation this morning but with a chest xray it seems she will be heading back to surgery. They are thinking somewhere she has a perforation. I am quite sure I will never be given more than I can handle, but with lack of sleep my emotions make me wonder. All I want is to hold her and let her know I how much she is loved!
Wednesday, September 21, 2011
Out of surgery...
Annabel is out of surgery and back in ICU. I am praying they begin the exubation process tomorrow. I need to hold her so bad. She cries silently due to the tube down her throat...breaking a momma's heart. Thank you Jesus for returning sweet Bella back to us with no drama tonight. It took longer because the can find no IV access so they had to leave in femoral line. They did get central line in chest and neck area. Thank you to everyone for all your comments.
Waiting to go to surgery...
Annabel will be going to surgery soon. I know she is totally in HIS hands so I am choosing not to waste my energy on worry. Thank you for continued
Update...
The CT scan showed unchanged so nothing should have affected her brain during this illness. Yea!
Scheduled for surgery either today or tomorrow. She is doing time trials on ventilator today and if she continues to do well then possible extubation after surgery. Asking for my prayers concerning sending her backin surgery since there is questions that did this happen during surgery concerning overload of fluids.
Scheduled for surgery either today or tomorrow. She is doing time trials on ventilator today and if she continues to do well then possible extubation after surgery. Asking for my prayers concerning sending her backin surgery since there is questions that did this happen during surgery concerning overload of fluids.
Tuesday, September 20, 2011
Waiting...
Things have slowed to a crawl concerning the vent. We are waiting for scan of her head to see if something happened when she was so sick. It has something to do with her 02/carbon dioxide levels. I wish I understood. I an waiting to ask more questions if I feel something truly did occur. So here we sit praying that nothing happened.
Monday, September 19, 2011
Slow and Steady wins the race...
So today they are basically just playing the numbers game the are tweaking adjustments on the vent.I really don't understand the vent machine as a whole but I do understand some of the individual numbers and we are getting better and better.she was placed back on the versed drip because giving bolus couldn't help her get on top of the pain/agitation. Lower left lobe is expanding so this is progress.
So big major praises for all that is going right, thank you Jesus for keeping Annabel safe.
Some prayer request for the next several days are that Annabel will not have brain damage from this illness. I really don't understand because I was totally taken by surprise when the doctor talked with me this afternoon. Something about oxygen and carbon dioxide, blood gasses and overcompensating on the vent. They were suppose to do the scan this evening but it is not ordered for this evening.
The next prayer request is that Annabel has to have a central line placed back into her chest. This will take place any day, not suspecting tomorrow since we re not NPO. It was when Annabel was returned to her room after surgery on Monday. There was a couple things mentioned to what really happened to her. One was that in surgery she received too much fluids which put her into fluid overload. I never liked sending Annabel to surgery but with all the lines being placed in and out of her chest I became complacent. No more! I am sure I will be a freak about.
So to all thank you for continued support and prayers. Again today I asked have we tuned the corner and are we not critically ill any longer. He said no our status will not change as long as she is on a ventilator and that we are admitted to the critical care unit...
So big major praises for all that is going right, thank you Jesus for keeping Annabel safe.
Some prayer request for the next several days are that Annabel will not have brain damage from this illness. I really don't understand because I was totally taken by surprise when the doctor talked with me this afternoon. Something about oxygen and carbon dioxide, blood gasses and overcompensating on the vent. They were suppose to do the scan this evening but it is not ordered for this evening.
The next prayer request is that Annabel has to have a central line placed back into her chest. This will take place any day, not suspecting tomorrow since we re not NPO. It was when Annabel was returned to her room after surgery on Monday. There was a couple things mentioned to what really happened to her. One was that in surgery she received too much fluids which put her into fluid overload. I never liked sending Annabel to surgery but with all the lines being placed in and out of her chest I became complacent. No more! I am sure I will be a freak about.
So to all thank you for continued support and prayers. Again today I asked have we tuned the corner and are we not critically ill any longer. He said no our status will not change as long as she is on a ventilator and that we are admitted to the critical care unit...
Sunday, September 18, 2011
Not much changed...
Not too much to update. She was awake most of the night. Today they removed the sedation drip and said just give PRN. Well that didn't last long. It took several more hours when it was started back up to get on top of it again. That is hard to watch her look at you, tears rolling out of eyes and know you can't help her. They also discontinue last blood pressure medicine. They are watching her heart rate closely. It was in low 50s this morning. Have I said lately how much I live this baby girl...thank you for continued prayers
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