Friday, July 24, 2009

Brianna needs our prayers...

I feel so sick. Brenda just called and they have Brianna back in the hospital. Please pray they get Brianna transferred to a much larger facility. She is having more spells turning blue and not getting enough oxygen. Brenda talked with the pulmonary doctor and he said she definetly has pulmonary hypertension and Brenda seems very concerned with what she heard. If you are just reading about Brianna for the first time she has full Trisomy 18. She has turned two recently.

The immediate concern is to get Brianna to another hospital. They were at her moms and the hospital is a small community hospital. My heart is breaking for Brenda. I will keep you posted when I have heard more from Brenda. She is having trouble getting a signal to go through.

Wednesday, July 22, 2009

Beach Week...



What a catch!!!

Colette, Brianna and Carly...

Shaunna (Annabel's cousin) sharing with Annabel all about life...

James (cousin) and Uncle Carl having fun in the pool...

Fishing and crabbing on the dock...

Derek and Annabel on the ferry ride over...

We are having a good time at the beach. The house is actually on the bay side so it is so nice to just sit on the porch and enjoy the views. I will just post a couple pictures today and then later possible do a slide show of our week. My parents have joined us and also my brother and his two children. His wife will be flying in this evening to join us until Sunday.

As far as Annabel she won't be her smiley self in all the pictures. She is not feeling as well as usual. It became obviously that she was getting another UTI on Monday so before heading out her pedi did her culture. She definitely has an infection but the culture results won't be back until today. It is so hard to watch her be in such discomfort. There will need to be more permanent procedure, that we know. She hold over 100 cc after urinating on her own consistently.
Hope every is having a great summer as it is going all too fast. The trisomy or SOFT conference is beginning tomorrow and I am sad not to be there to see old friends and meet new ones! But so important to spend this time with my family.