I have tried to update but having so much trouble. Annabel continues to be free of a central line. She continue to rake in the minimal amount of feeds through her g-tube. She continues to experience since December one UTI after another. It is quite frustrating that we are not able to get her free of this bacteria. It is E-coli and they are sure she is colonized. We have consulted with Infectious Disease to see if a plan can be made to help her out.
Annabel also had a sleep study which again confirms severe sleep apnea. She will go in for anothe
sleep study soon to see what can be done with a bi-pap.
We are looking forward to summer and spending time in the pool and also going to the beach!
I am truly trying to update her blog more often.
