Wednesday, March 19, 2008
Today appeared to be a better morning for Annabel. Now that she is on an antibiotic, I believe that she is feeling better. Tara dropped her off this morning curious to see how Annabel reacts to us leaving her again. When Tara was unloading her from the car, her teacher walked up and Annabel gave her a huge smile..... relief for us!! At that point I knew that I was making the right decision. I am anxious now to get through the day to find out what her reaction will be after school. I spoke with the bus company and was able to arrange for the bus to start transporting her this afternoon. 3:15 rolls around and it is time for Annabel to be loading the bus. I was told that she would probably be one of the first to be dropped off so I estimated her arrival around 3:30-3:45. At 4:00, I started to get nervous because the bus had not arrived. At this point Tara is pacing the house and looking out the front door waiting to see Annabel. Finally, I couldn't take it any longer so I called the school and they informed me that they were running late due to a lack of wheelchair ramp on the first bus. At this time I hear a horn honk in the front driveway and my adrenaline starts to rush nervous of how Annabel will react.... She was soo happy when we saw her on the bus and the lady said that she was just singing away the whole way home as if she knew what was going on. It was incredible... a complete 360 from the day before!!! She is just as happy as can be and is smiling for everyone. God has truly blessed my family with this precious angel.
I can't believe that she has lived long enough to start school. Today is a day that I have looked forward to for awhile now. It is an incredible opportunity for her to interact with other children as well as be surrounded by people that aren't her family. My daughter, Tara, is having a difficult time letting her go to school, but, once Annabel gets used to the routine, I think everyone will feel more comfortable about it. I could not get everything setup for her to ride the bus so Tara and I dropped her off this morning. It was nice to have some free time during the day to get all my errands done, but I had mixed feelings about how she was adapting. Finally 3:15 came around and I got to pick up the little angel and find out how her day went. Once her eyes made contact with me she started wailing.... her heart was broken as if she thought she would never see me again. Tara came over a little while later and Annabel was all smiles and laughs for her. To think that doctors and statistics show that children with Trisomy 18 have problems mentally... this little girl is a lot smarter than we think! Her gastro doctor called today and has setup an appointment to have a Gpeg put in her next week... he is uncertain if it is just the Gpeg or if he will have to perform a fundoplication instead. At least we are moving in a positive direction to help her with feeding and emptying.
Tuesday, March 18, 2008
Today was an exciting day for us all. Annabel is now 3yrs. old and we are going to enroll her in school. She did not wake up with her usual happy go lucky smile this morning. After testing her urine, we determined that she has another UTI. This is a discouraging way to start the day off since we have not heard anything about the gastric emptying scan last week to determine if she needs surgery. I am struggling to decide on which doctor to contact about another UTI. It is a daily struggle to find an antibiotic that will get rid of the infection. We went to speech and PT as usual to make sure she gets her therapy in. She dug into the birthday cake that my oldest daughter, Tara, baked for her. It is inspiring to see her eating cake and drinking gatorade like a normal child. She even signed "more" and reached for the drink, which is very unusual behavior for her. It is not typical of Annabel to drink out of a cup or even eat solid foods so she is progressing wonderfully! After discussing with the therapist and explaining my struggles with the doctors and infections, I wrote her urologist an email explaining that Annabel needs a doctor that is going to help her and not treat her based on Trisomy 18. Not but an hour later her doctor, which hasn't had anything to do with her since September, responded and called in a prescription for her infection and is now taking steps in the right direction to help her. It was as if God knew that I was stressed about what to do. Tonight we had a little family party for her with two neighbors that live down the road. Annabel loved to look at the balloons and listen to the singing one. Overall, the day ended on a positive note and she will be off to her first day of school in the morning.