Tuesday, July 1, 2014

We need answers and a plan..

Annabel is inpatient in Houston. She has had ongoing pain and vomiting. She has had small amount of bleeding out her button when we vent her. But Sunday she spiked a fever at the beach and began vomiting and was in pain. We left right away for our home hospital where she began putting large amounts of blood out her ostomy.  That is what led us to be transferred to Houston. Fever improved, they placed a ng tube into her stomach and this helped with her vomiting.
She does have an infection in her blood, the scoped her and her bowels are described as severe and friable. The next few days will tell us more as to what is going on with biopsies. Thank you that you keep reading even though I cant
seem to sit down and write out my words.

Thursday, June 5, 2014

Where to start.....

Please forgive me for being away. So many have stood by our side for so long with your constant thoughts and prayers. So many times when I updated it was through Facebook, mainly because it was quicker and easier. I love to post pictures and I was having so much trouble on my new apple computer and just became frustrated.
 Tonight I couldn't get a signal on my computer where it is easier to type so this update will be brief.
In October Annabel had her total colon removed. After this she had 5 very successful weeks of eating through her g-tube. She continued to live life free of a central line until this past Dec '13 when her stomach totally stopped working. The first of January she had her central line placed and continues to struggle with eletrolyte issues, obstruction issue! vomiting and dumping. She is suffering ongoing liver damage. She is having to be placed on almost all IV medications due to intolerance of the smallest amounts going into her g-tube.
If any of you still follow her blog and are also on Facebook, please message me and you can see more pictures of Annabel.
We are having some tough conversation concerning Annabel's plan of care, basically to keep Annabel as comfortable as possible. This isn't anything definitive yet but I will try to recap the last several months and get my daughter to help me post updated pictures of sweet Bella!

Monday, July 15, 2013

Surgery done and discharged...

 All went very well with Annabel's surgery today. She had a supra pubic catheter placed, dilation and a cystoscope done.
She came through the anesthesia as well as every with only a little nausea. We were discharged quickly and home in 2 hours.

But I am thanking God for my wonderful night nurse tonight. She has been in so much pain since about 5:00 p.m. She has pain spell with heart rates staying over 200 for about 30 minutes. She is resting in between. I am fairly sure it is hurting her to urinate so therefore she is trying so hard not to. We can't use the catheter yet, so we are having to let her go on her own.She was dilated as big as possible and it was bloody and he want to urine to wash all the blood out, so we much just endure the pain for hopefully on about 12 more hours.

This picture is here to the right of Tara (Annabel's sister) and Annabel watching cartoon prior to going into surgery. I am so thankful that Tara has moved back home, only one more semester of Law School! We had to leave this morning at 4 a.m. and it was nice to have Tara drive us and enjoy our talks.
She loves her sister and her sister loves her!

I am grateful for answered prayers that her surgery was uneventful and we were discharged the same day.
I am also grateful and thankful to Tara for the help and being with us today.