Wednesday, April 30, 2008
Just a brief note to say that she had a better day today. I fed her every two hours during the night through her pump with liquids (lots of water). Also today we have given her more liquids than usual. Her urine is not clear but looks better than yesterday so we will continue this same routine tonight. She is her happy self and eating much better today. God is so good. I realize her life could be so much worse, and I am grateful for His goodness! Thanks to all who call and write and pray for this precious child. I think of all of you often and so happy for the friend I know and my new friends through this blog.
Tuesday, April 29, 2008
There are no words to explain how I felt this morning when I cathed Annabel. Yesterday was the first day without antibiotics. When she went to bed her urine was clear. This morning her urine looks like sewer water. It was very murky and brown. I truly could not believe my eyes. She did cry out several times during the night. She has been doing that and I was not sure if it was her tube feedings making her uncomfortable, so last night I discontinued them. I did place a call to Dr. Roth (urologist) at Texas Children's Hospital but have not heard back. I am sure he will not hesitate to express his frustration also. I was so looking forward to being off the antibiotics so that her tummy could possibly return to normal. I really felt with the IV antibiotics, the antibiotic wash 2 times daily of her bladder, then the oral antibiotic we would be infection free for a longer period of time.
She did not make her full day of therapy today. She was super tired today and we just brought her home for a long nap. Sorry, but that is a lot of whinning. I want to thank my daughter, Tara, who took her to her therapy and babysat with her today so I could go to Houston. She is my right hand and I don't know what I would do if I could not just call upon her anytime. She always is willing to reschedule whatever she has to take care of Annabel.
Sunday, April 27, 2008
Where did the weekend go??? We probably didn't get much accomplished, but we sure are relaxed. Today was Annabel's last day on the antibiotic. Hopefully tomorrow she will resume her normal diet. She still has some congestion, but she is surely feeling better. She is such a happy girl. She is still waking during the night several times, but she puts herself right back to sleep. We are hoping to try school for a few hours this week. Tonight her big brother, Tyler came by and finished the evening off with storytime.