The life story of Annabel Grace Shelander... living with Trisomy 18, the struggles along the way, and the triumphs that she continues to have.
Thursday, September 3, 2009
Brianna receives her Angel Wings...
Brianna Botts has received her Angel wings today at 2:55 p.m. I cannot imagine what her family is feeling as they try to walk this road with arms so empty.
I am speechless. I seem confused, walking in a fog and seem to snap at anyone for no reason these last few days. I know my anger is not for lack of faith, I do believe. I do know she is in a much better place. My problem is just my selfishness and my lack of understanding. Understanding why this Trisomy thing is so ugly. I do know that these little ones are so full of joy, love, goodness and peace. I do know that their gifts are given by our sweet Jesus. I just don't understand why He calls them home so soon????
Alyssa's mom, Trish, wrote this beautiful piece that I have copied with her permission. God has truly given Trish a wonderful gift that shines so bright through her writing. It addresses so clearly the emotions and the journey we now travel with Trisomy 18. Alyssa's blog address is: www.wndrfllymde.blogspot.com
Right now I'm driving down the T18 highway in the backseat of a friends car...Brenda Botts. Gods at the wheel and Brenda along w/Bri (Jerry and Ashley) are alongside in the passenger seat. The view from the back is alittle obstructed but from back here the road feels hilly and narrow and it's hard to see where we're being led.
I'm feeling motion sickness and wondering how I can get comfortable. You can see this isn't the most comfortable ride for them as a family, but they are doing what they can to make the most out it. The Botts family, they are enjoying their togetherness. They are glad to have a trusty car, and a reliable driver. They're happy that they can focus on what's happening in the moment and allow their driver to worry about what is ahead. They aren't even wearing seat beats! Trusting that God will get them to their destination safely.
Me, here in the back.. I want to lean forward and strap them in. I want to ask the driver to slow down, or stop for bit so I can catch my breath. But I'm just along for the ride, a stow away waiting for the rise of the next hill, dreading the decline..wondering if there will be a clear view of what's ahead.
The Botts family have been kind in letting me stow away here in the backseat, they share bits of their front seat treasures with me. They share their morsels of food (encouragement) and fresh water (faith in a living God), even their medicine ( big doses of T18 reality) willingly. Being back here on this trip is helping me to prepare for when it's my(our) turn in the front seat.
How blessed I am that God is sustaining the Botts family so much so that they are willing to share their experience. How blessed are they to have such a loving and compassionate God. Brenda and her family are teaching me, and are examples of how God does work within. God is good. Even when the end is near He is good.
For anyone who wants to visit Brianna's blog, the address is: www.briannagiveshope.blogspot.com
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