Saturday, June 20, 2009

The Great Physician...

Sweetest sleep ever...

I am not feeling I have very much to write. I want to let everyone know that Annabel is doing so well. I have to make myself remember that she has this ugly thing called Trisomy 18.

The last several months prior to the surgery had become stressful concerning her apnea spells, the machine for her to breathe that wouldn't always work, the bowel twisting on itself and causing great pain, and the UTI infection and antibiotics.

There is not a doubt that all the prayers for Annabel were heard. She is having no apnea spells at all, yes no oxygen and no bi-pap machine for now. She is urinating just like a little girl should and I have no reason to suspect she is not emptying her bladder. The huge change also is that she hasn't had any laxative but once since her surgery. This entire week she has had BM regularly and her tummy is soft and so small. She is taking breastmilk and this really seems to be agreeing with her.

I will continue to be thankful for all the doctors who operated on Annabel and took care of her. I know with out a doubt that she was in the hands of the Great Physician. He orchestrated everything from beginning to end and I continue to be grateful for His goodness...

Upon release from the hospital she weighed 19.7lbs. Back in April she was 24.4lbs. She is slowly inching up the scales. We are adding whatever we can to her diet to give her calories and get her protein intake up. She has lost what little muscle she had and I am sure when she resumes her therapy this will come back as well.

I am sad to say that I will not be attending the Trisomy (SOFT) conference this year. My twins will be turning 17 in early Aug. As a family we will be renting a beach home and spending the week together. This was the only time that we could all be together. I will surely miss old friend and the new friends that we would have made. Carly and Colette will be senior this year and my plan is to make as many memories as possible and to not miss a thing.

Monday, June 15, 2009

We are feeling pretty normal around here...





Annabel seems to be doing so well. I don't want to take any of this wellness for granted at all! We went from about 10-12 meds down to maybe 3. We did have to use a little miralax but hey, that was only a little. Normally, it was a huge dose each day. Her weight is still really low and need to bring that up. She has lost what little muscle we had but I know when she resumes therapy she will pack it on (haha). I guess we are slow with pictures because some days we don't even get dressed. Well, she doesn't always get dressed but most days I do. Here are just a couple of pictures of her playing in her pool(no water) with the balls. She sits for a little bit and then gets tired and she falls back.


For all of you that know Mallorie Rose (on the sidebar), her sweet mom is Connie. So yes, Connie will probably not speak to me after this but today is her birthday. She did this to me, so payback time. On a more serious note, Connie was in the hospital a couple weeks ago (no, I didn't blog for her, she is private and I do respect some things) and there is something they found questionable on the CT scan. She is having more test tomorrow and I know she would appreciate prayers sent up on her behalf. When you are a mommy and have young ones your mind just goes there, can't help it! Once the results are in, I will blog if she doesn't.