Monday, April 13, 2009
The picture above was of the kids after Mass minus my 21 yrs. old son who is off preparing for his deployment. He will be back in a month. As you can see Annabel was not feeling very well. I was desperate to go to Mass, to be with my family and celebrate Easter (o.k. maybe because she had a new Easter dress)!
Annabel had done so well on the C-PAP since the weekend, but as of this past Friday she has not been doing so well. Either her oxygen level is too low and it constantly alarms or her heart rate is racing in between 150 - 210. We had to place her on oxygen to get through yesterday afternoon and then last night I had to turn her level on the pulse ox down just to sleep some. I have just called her pulmonary to see if we have to adjust her machine. We are waiting on a call for another study to be done with them adjusting her levels while she sleeps. Praying this will not take
6 months to get again. Don't think it will with her new diagnosis.
We are in route to Houston for an appt. with urology. I do need prayers concerning this. This is our wonderful surgeon (because he is) but doctor that we struggle with due to the fact that he doesn't find much purpose or reason in Annabel's life. WE are praying he will be attentive to listen to her new issues and that when we leave we will feel like steps are being taken in the right direction. I will post a little later after we know more.
Hoping that each and everyone had a beautiful and very Blessed Easter Sunday!