Saturday, April 18, 2009
At this point everyone seems more relaxed. They are even asking me what I think and how I think she is responding. I did get some sleep right next to sweet Annabel. Even though I didn't get my sweet smile, she did hold my hand throughout the night. Yesterday, she would hold it briefly then toss it aside like she didn't want anything to touch her.
Pedi Surgery came in first and they said they are not as concern that surgery is eminent. The felt her belly and said that if it gets firm again we will have to reevaluate.
Pulmonary was next and he seemed so please that we are probably only dealing with C-diff. He says it is treatable and that hopefully we will see her getting better in the new few days. He said her antibiotic can be given via G-tube so we do not have to stay full 14 days.
More x-rays after him to see how she looks this morning. Then lab came by to draw blood for levels.
The Head Surgeon came by to talk about what would need to happen. She will need surgery. They are not sure it will happen at this stay. They say that she has a very large loopy, lazy area of her bowel/colon (can't remember, is it the same thing?) that will need to be removed and resected. Yuck! It is probably not the surgery that scared me it is just the putting to sleep and waking up that I freak out about. One thing that she really needs is something to alleviate this cathing business. We had just seen her urologist the day we admitted her and he clear her for that surgery. The one he mentioned didn't require an incision but she would need anesthesia. I did ask the surgeon if the urinary/and the loopy bowel could be done together and he said not a good idea. I was just hoping one less time to put her to sleep. They are all saying that the surgery could still need to take place while here but it not any minute.
What she needs to do is wake up and respond to us. That is my prayer. She does seem to try to focus when she opens her eyes but they just roll back into her head and she is asleep again. I think her little body is so exhausted and the runny diapers still continue at a high frequency. To me at this point she seems a little more comfortable. We were able to have her sleep with her C-PAP after around 1 a.m. because her sats were dropping and she seemed relieved to have it on. We just took it off this morning and they are not dipping low now. They are fairly sure that when she is well she will become more stable on the CPAP. They say that is not an option but we want to lessen her need for oxygen.
Will keep you posted today especially if things change. I feel that she has down declined since last night and that is what we were specifically praying for. It will just take time for the antibiotic to help with her belly and diarrhea.
The top phot is of yesterday when she wanted to cover her eyes and everything go away. This one here at the bottom seems to be a more peaceful Annabel. I am hoping that later today maybe some eyes open with a little smile.
This quote was sent to Annabel a few days ago by Lauren. Annabel's biggest gift has been her beautiful smile, so this quote by Mother Teresa was close to my heart.
"Every time you smile at someone, it is an action of love, a gift to that person, a beautiful thing" - Mother Teresa