I guess I thought I posted that we were released. She came home mid-week and we are so happy to be home. She has slept well in her own bed. You can just tell she is so comfortable in her own place.
Annabel is still needing prayers. She is still very weak and we knew this recovery wouldn't be quick. She continues to run fevers everyday. They stay mostly 100.5- 100.9. The reason is unknown, but before being discharged they ran blood cultures and it was no growth.
We are doing some feeds but her formula runs straight through her and looks like she isn't absorbing. She is still having to be weaned off the medicine. She is taking Ativan and she seems so sad at times during the day. This is very unlike Annabel. Her voice is beginning to come back but sounds like a tiny kitten. They weaning will be discontinues on October 10th and I cannot wait. Her breathing pattern are still different where it looks like she is uncomfortable with her breathing.
We will be seeing her GI doctor Tuesday and hoping for more answers as to the fevers. These fevers were happening prior to her going into the hospital for a couple months.
I will post later on this subject, it isn't pleasant to speak about. But is very obvious that Annabel has stool coming from her from opening. I have asked doctors to look into this and was told this was very unlikely but it is happening so often. If this is an actual problem Annabel will always be infected. This could be an explaination for the continued UTI's.