Today we returned to the 12th floor. I don't think I was prepared for the emotions that hit me. The first two doctors who came to visit after seeing her name back on the board commented on how fast and how impressive her crashing was. after being moved to ICU for four days in a row we had to talk to different doctors about how far and what we wanted to do for Annabel. we were talked to at length about her three failures and that would be it. The last 11 days are a blur and sometime really don't see real. When Tara came by the hospital this evening she mentioned the same exact thing about arrive last Monday afternoon to a room and hallway so full of doctors working on her. She also said what really happened but I just don't want to think that deep just yet. She is with us and I want to not waste anyway not being grateful.
We are in a regular room being monitored on oxygen. She is been weaned off the fentynal/versed and having some withdrawals. She is being given Ativan which helps. They are not beginning feeds due to the large dilated bowel loops and sounds like with the weekend we won't be dealing with it either.
The life story of Annabel Grace Shelander... living with Trisomy 18, the struggles along the way, and the triumphs that she continues to have.
Friday, September 23, 2011
Thursday, September 22, 2011
Extubated...
Yes she was extubated and still doing well! I think back a week ago and we were all here because they thought Annabel wouldn't pull through. Through Annabel, I continually feel blessed. Blessed by all you who love her, pray for her and celebrate her sweet life. Blessed because God has allowed us more time to be with Annabel here on Earth. I could never begin to deserve what we have been given through her sweet, sweet life.
Updating my last update...
Updating my last update:
Ok enough of this roller coaster ride. Surgery is going to reevaluate with xrays in 6 hours. The head critical care doctor really doesn't think she will be going to surgery today and she feels we need to try to begin intubation. So I maybe holding my sweet angel baby by this evening. An answer to prayers
UPDATE:
The night was long and hard. She had more versed and fentanyl than ever. The say she has ICU psychosis, ugh. 4 nights of no sleep, although she can sleep daytime. We were hoping for extubation this morning but with a chest xray it seems she will be heading back to surgery. They are thinking somewhere she has a perforation. I am quite sure I will never be given more than I can handle, but with lack of sleep my emotions make me wonder. All I want is to hold her and let her know I how much she is loved!
Ok enough of this roller coaster ride. Surgery is going to reevaluate with xrays in 6 hours. The head critical care doctor really doesn't think she will be going to surgery today and she feels we need to try to begin intubation. So I maybe holding my sweet angel baby by this evening. An answer to prayers
UPDATE:
The night was long and hard. She had more versed and fentanyl than ever. The say she has ICU psychosis, ugh. 4 nights of no sleep, although she can sleep daytime. We were hoping for extubation this morning but with a chest xray it seems she will be heading back to surgery. They are thinking somewhere she has a perforation. I am quite sure I will never be given more than I can handle, but with lack of sleep my emotions make me wonder. All I want is to hold her and let her know I how much she is loved!
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