Monday, February 6, 2012

A day in therapy through pictures...

             This is Annabel during therapy playing Old MacDonald's Farm
    "If You are Happy and YOu KNow it, Clap Your Hand!" her favorite song!

                                        Loving on Mr. Potato Head  

                                      Stretching in PT with Courtney...
                                Playing catch with Meg and Courtney
Stretching on the ball in PT...

Annabel seems to do much better with a PICC line vs. the central line. She doesn't seem to have all the skin breakdown or the blood infections due to the central line.
She seems to have more colds since being on the ventilator in late September and this we were warned about. She had 3 great weeks of labs after being off the TPN for two weeks. The last two weeks of her labs are not good for her liver. Again, in the big picture she has been in patient since early January. Her liver is either stressed or taking a hit from something we can see. We are hoping it is just due from a new medicine she is being given for motility. One of its side effects are very hard on liver and kidneys. We also have seen a decline in her output and are watching.  Her nights are hard and we aren't sure if the medicines are causing her to cramp and she appears like she can't stop moving her legs when these episodes occur. We are still dealing with her gagging/retching/vomiting but just aren't read to give up all hope on her feeding again. Oh how she gets so close and then falls sick again!
Tomorrow will be lab day and if these labs still aren't good we will call and request to be discontinued from this medicine.

Today was therapy day. She is always so happy and cooperative even when tired and not feeling her best. She just always wants to please, for this we are so proud of her. She is a very hard worker and rarely gives up.

I want to especially thank who all still come by to see Annabel's blog. There was always times when I felt that I had nothing left to say (nothing positive) or just felt flat and could post. I have felt this for a long while now. I know when I follow others blogs, I may not comment but I always read. If they go long without a post I become very concerned. So even if I don't feel I have much to say,  I am going to try to post pictures. Just know if Annabel is ill that I will always try to put something up. So again thank you for leaving your comment or just coming by to see her sweet smile.


Jorge and Carrie said...

We always check and we are always happy to see her smile! And we understand that no news is usually good news! Love, Stinky (the OTHER Annabel) :)

Janet said...

Annabel just makes my heart smile...
I know exactly what you mean about not feeling like you could blog, feel the same sometimes!
So great to see her so happy with therapy, she is just so amazing and special to me and my family!
Love y'all and will be praying for y'all to get to "good" place with the medicines.

Laurie in Ca. said...

I love all the pictures of our Annabel and her smile always melts my heart. I have been in a blogging funk too and hope to be better soon. I love you girls Cathy and continue to pray Gods best for you girls and your family. If you talk to Connie, please tell her Hi for me and that I love her too.

Love and Hugs, Laurie

Kelly said...

i am guilty of not posting for a very long time! but i still come by and read about akaiya's twin and i love seeing the pictures! give that sweet girl a squeeze from us :)

Barbara said...

This post is especially delightful to me! Thanks for the photos of Annabel in therapy!

Kathy said...

"Our" girl is so beautiful and looks so grown up, Cathy! Wow!

As always her smile could melt an iceberg in five seconds flat! She continues to amaze and inspire!

Thank you for sharing Annabel at her very best, working so hard and so happy doing it!!!

Prayers always. Love you girls!!!

The Smiling Mommy said...

Annabel is absolutely beautiful. I wanted to thank you for sharing her story, her gift. She has the brightest light, and I look forward to hearing more about her, and your family.

Mummy Pauline said...

Hi Annabel,

So gooooood to see that u r progressing well. U r so beautiful & touched many hearts around the world.

Dear Kathy,

You are just great, really admire your courage & determination.