Friday, April 1, 2011

April Fools... NOT!!!

As our sweet nurse Rebekah called me this afternoon around 4:30 or so to report that we needed to bring Annabel to the hospital. My husband and I decided to drive to the beach and discuss the possibility of building our beach house back since the hurricane washed it away. So when she explained that she couldn't draw back blood or flush her central line with saline, my very first thought was panic! In a flash a thought went through my mind that it was a brand new line just placed Wednesday night late and we had just arrived home last night, so of course I thought no way, this is April Fools Day!
But I could tell from Rebekah's voice that it wasn't a joke, she was serious. She had already called the nurse at the company who supplies our TPN/Lipids to inquire.
When this sunk in, I realized that our local hospital doesn't handle central lines, only Picc lines. So I called Vascular Access at Texas Children's and they called our nurse, Rebekah to walk her through a few things to try to get it flowing again. It didn't work with the measure that could be done in the home. If we drove to Houston due to the hospital being so crowded we would probably be sitting there until tomorrow morning, I was told. So she told us to leave our home at 5 a.m. and arrive around 7 a.m. and Vascular Access should be paged to see us in the Emergency Room. As I sit here, hours later I still cannot believe our struggles with the central lines that are placed into Annabel's body. She has had 3 serious line infections, one line the catheter was flipping up in her vein near her neck, another line that was only in about 5 days, would flush but not draw blood, was found to be pulling back on tissue and had to be removed. So now the 6th one has been in place for not quite 24 hours and already is giving us trouble. Oh how I am praying they can do some sort of power flush and free up this line. If this wasn't such a serious matter, I would truly think someone is testing me to see just how much I can handle.
Another issue we noticed tonight is that she is running a low grade temperature of 100.1. Of course this isn't much at all, but since the day after they pulled Annabel's infected line her temperature has been anywhere from 95.1 to 97.8. Most of the nurses commented "is this her normal temperature?" I am not going to get all caught up in worry over this, but with Annabel it can always mean the beginning of something. Prayers appreciated and Good Night....


Anonymous said...

Oh my goodness. I cannot believe your struggles. Life is so unfair! I hate T18!!! Hang in there! We are praying for you!
The Bonds

Jill Smith said...

Always praying!

Colleen said...

I'm so sorry you are going through this again. I will keep your family in my prayers. Hugs!

Laurie in Ca. said...

Praying as always Cathy and I am so sorry for the disappointment it brings. You all need a break, a big break. Love you.

Love and Hugs, Laurie

Kathy said...

First, I hope that you and Mel do rebuild a new sturdy, hurricane-proof beach house. You and your family so enjoyed your previous one and so deserve to have a place like that to go to to relax and enjoy!!!

Just think of all those future grandkids there with you! :-)

Don't even know what to say about your sweet girl's latest issue. Enough!!! Is all I can think.

Praying for a miraculous creative miracle for your girl so the line is not needed. Praying!!!

Hoping things are going well, that you are all ready on your way back home. Love you girls!!! You hold my heart and have my prayers.

May said...

What's you've already 'taken' is much more than I can ever imagine myself 'taking'. I can only think how stressful it is dealing with her central line...each time you mention problems with it sends a pang to my heart!

Anonymous said...

Like so many others, I am speechless. I can not imagine the frustration you feel, and poor sweet Annabel. She so much deserves peace and comfort. I will always pray for her and your family. I love each of you dearly.


connie said...

Oh, just realized this is a regular central line, not PICC. I bet if IV team can't do it, that Dr. H might be asked? I would talk to Mary. I know they have done the same in the PICU before, too.