This song was sent to me by Emily's mom, Sara. I listened to it and cried. Then yesterday morning I heard Annie Lennox sing on Good Morning America and she sang Universal Child and I cried again. Today I purchased the CD and yes the tears fell again.
With each line of this song I think of Annabel. It is my constant reminder that we are her shelter from the storm, from the pain and hurting. I don't have to do anything heroic, I just have to be here each day and keep her safe and warm. I can imagine how this song rings true for so many of us who experience this life for our children. So just sit back and listen to the beautiful words being sung...
The last two days have been great for Annabel. She is off the IV antibiotic and just to finish the dose we have to give her benadryl due to her itching and clawing at herself. She was drug up for several days and we just couldn't see this happy Annabel. I am so thankful for how good she has been feeling. Also, I began with a small amount of breast milk into her tummy. I know until I try giving her something in her tummy one last time I can't accept the fact that she is TPN/Lipid dependant. So for a week now we have been bolus 3 -4 feeds daily and doesn't seem to be experiencing any discomfort. We are watching for distention, bloating and nausea but she seem to be doing ok.
How many mountains must you face before you learn to climb.
I'm gonna give you what it takes, my universal child.
I'm gonna try to find a way to keep you safe from harm.
I'm gonna be a special place, a shelter from the storm.
And I can see you, your everywhere, your portrait fills the sky.
I'm gonna wrap my arms around you, my universal child.
And when I look into your eyes, so innocent and pure.
I see the shadow of the things that you've had to endure.
I see the tracks of every tear that ran ran down your face.
I see the hurt, I see the pain, I see the human race.
I can feel you, your everywhere, shining like the sun.
And I wished to God that kids like you could be like everyone.
How many tumbles must it take before you learn to fly.
I'm going to help you spread your wings, my universal child.
I can feel you everywhere shining like the sun.
And I wished to God that kids like you could be like everyone.
And I wished to God that kids like you could be like everyone.
I'm gonna give you what it takes, my universal child.
I'm gonna try to find a way to keep you safe from harm.
I'm gonna be a special place, a shelter from the storm.
And I can see you, your everywhere, your portrait fills the sky.
I'm gonna wrap my arms around you, my universal child.
And when I look into your eyes, so innocent and pure.
I see the shadow of the things that you've had to endure.
I see the tracks of every tear that ran ran down your face.
I see the hurt, I see the pain, I see the human race.
I can feel you, your everywhere, shining like the sun.
And I wished to God that kids like you could be like everyone.
How many tumbles must it take before you learn to fly.
I'm going to help you spread your wings, my universal child.
I can feel you everywhere shining like the sun.
And I wished to God that kids like you could be like everyone.
And I wished to God that kids like you could be like everyone.
Annabel loved wearing my reading glasses. It made us wonder if she saw more clearly with glasses.
5 comments:
so good to hear that she is tolerating breastmilk. hope it continues!
may
Beautiful song!
That beautiful girl. For some reason reading that you had found the song I posted and loved it as well, brought me to tears. Knowing that you are out there, never having met each other in real life, but living the same life and feeling the same emotions ... for some reason it has me in tears. I wish we could meet someday.
Please give that sweet girl a hug from me and Emily. I am SO excited to read that she tolerated some tummy feeds!!
So good to hear she is able to tolerate some tummy food! I LOVE the picture of her in your glasses, she seems SO happy!
Love the song!
WHAT a beautiful girl!!!! Never ceases to make me smile to see her smile! :D
-Carley
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