Two words come to mind about the last few weeks. The first is that we have been waiting for more than 3 weeks for results of Annabel's last hospital stay and her motility testing. We drove to Houston last week for results and he didn't even know we had the test done. That was frustrating. As of today we still haven't received the call that was promised with the results.
The second weight, has to do with Annabel gaining 4 lbs. since being discharged. The nutrition she received in her central line does put weight on but we were told last week at the appt. she had gained 2lbs. in a month and since our appointment last week she has gained 2 more pounds. She is not comfortable with this weight and something is being decided about adjusting her TPN and Lipids. Also her liver enzymes continue to go up and up with each week her blood is drawn. There are other things going on with her Potassium and Magnesium, but I don't understand all of it. So I will wait....
We did attempt some speech therapy this week. She has regressed but that is to be expected. The following pictures are of her attempt at speech. Overall, with our sweet nurse Rebekah at our home, Annabel is very happy and being stimulated and well cared for. I have learned the TPN process and changed it over the weekend but I would prefer when Rebekah is here that she do the change.
Some good news is that my Tyler (soldier) is coming home at the end of July. Just got the news today and we couldn't be happier to have him close to home. He is considering going active and this could mean that he would be going again but for now he will be home and I won't stress needlessly.