Tuesday, July 6, 2010

Wait, Weight and more waiting...

Two words come to mind about the last few weeks. The first is that we have been waiting for more than 3 weeks for results of Annabel's last hospital stay and her motility testing. We drove to Houston last week for results and he didn't even know we had the test done. That was frustrating. As of today we still haven't received the call that was promised with the results.


The second weight, has to do with Annabel gaining 4 lbs. since being discharged. The nutrition she received in her central line does put weight on but we were told last week at the appt. she had gained 2lbs. in a month and since our appointment last week she has gained 2 more pounds. She is not comfortable with this weight and something is being decided about adjusting her TPN and Lipids. Also her liver enzymes continue to go up and up with each week her blood is drawn. There are other things going on with her Potassium and Magnesium, but I don't understand all of it. So I will wait....


We did attempt some speech therapy this week. She has regressed but that is to be expected. The following pictures are of her attempt at speech. Overall, with our sweet nurse Rebekah at our home, Annabel is very happy and being stimulated and well cared for. I have learned the TPN process and changed it over the weekend but I would prefer when Rebekah is here that she do the change.


Some good news is that my Tyler (soldier) is coming home at the end of July. Just got the news today and we couldn't be happier to have him close to home. He is considering going active and this could mean that he would be going again but for now he will be home and I won't stress needlessly.











7 comments:

Laurie in Ca. said...

I love you girls and am praying for you both Cathy. Your patience amazes me and I know it is God getting you through. Many prayers for our sweet Annabel. Yay Tyler!! It will be such a blessing for all of you.:)

Love and Hugs, Laurie

Stacy said...

Oh Cathy, it is so hard to be in the waiting room, but know that God will bring you out at His appointed time. I say it again...you are such an inspiration and a Godly example. Be strengthened my dear sister in the Lord.

Love in Christ,
Stacy

Anonymous said...

Thank you so much for the update, I have been so concerned for both of you. I hope to spend time with her soon.

Edie

Penny said...

wow, I can't believe they STILL don't have the results to you! I would be ready to storm the gates but then again I bet it would do no good. Maybe this is one of those is God's perfect timing things,

I love seeing the pictures she looks like she is really concentrating!

May said...

I love how she gets on with it, even with her issues. It's frustrating to go through the tests and then still ???? Love her Mermaid outfit!

ANewKindOfPerfect said...

Cathy, I posted some pictures on my blog just for you!

Kathy said...

Love the serious and concentrating so hard look on her face as they work with her. Adorable!

Such great news about Tyler coming home. We are all so grateful for those brave young people who protect our country!!! "Thank you" just doesn't do it!!! But thank him anyway for us please!

Prayers continue!!! Love you girls!!!