Thursday, July 8, 2010

Progress????

Not sure if this is progress, but I have decided to change GI's . The crazy thing is that we had to wait for Dr. K (our current) GI to give us the OK that we can switch to another doctor in the practice. I really believe it is best for Annabel to stay at the children's hospital for now for her care. So we are asking that the doctor that did her motililty workup take over Annabel's care. We still don't have results but are hoping that we will get an appointment to find out these results. Because of Annabel weight gain they are cutting her lipids in half, and cutting the dextrose (sugars) in her TPN from in the 900 to the 700's. Whatever all that means, we should see less weight gain. Hoping this will have her breathing easier. We have also realized that her residual in her bladder are quite high again. But hey, after doing TPN/central line, cathing is a breeze. The following picture is of Annabel at her highest weight ever. She almost looks like a five year old and surely feels like one. Everywhere we go people comment on how much she has grown recently.

Look at these arms, legs and cheeks...

Here is my picture of Tyler while we were skyping two days ago. It was so good to talk with him for a very long time. He looks great and I can tell he is happy to be in the count phase of this journey. Thank you for all praying for him while he was gone.

Tyler and his great smile!




6 comments:

Kelly said...

oh my goodness! she looks like such a chunky monkey! i really am sad that we won't be seeing you guys at conference. hope you get some answers soon. i am so frustrated for you!

May said...

She looks such a good size. Testament to the great care she receives at home!

The VW's said...

I can't believe that you have had to wait that long for results! Crazy! I hope you are able to get them soon and that she is able to go back to her normal feeds soon too!

She does look like she's grown! She also looks absolutely ADORABLE!!! Hang in there Momma! Love, Hugs and Prayers!!!

Laurie in Ca. said...

I am praying Cathy, for results and for you guys. I know the weight is a concern but she sure looks beautiful and healthy to me. Looks can be deceiving right? Annabel is the strongest little girl I know. And her mommy is pretty strong too:) Love you and so glad for Skype and your ability to reach right out to him while he is away. Have a wonderful and peaceful weekend Cathy. I love you.

Love and Hugs, Laurie

ANewKindOfPerfect said...

I'm glad they cut down her lipids and sugars. I hope it slows her weight gain down a bit. She is starting to look chunky! I'm glad you saw the pictures of my Peanut while on TPN. That's what happens when the GI doesn't listen to you at first!

Kathy said...

Thank you, God for Skyping!!! To "see" as well as talk really feels like a genuine visit.

Annabel looks great! Hoping and praying for good results and a perfect treatment plan for her!!