Sunday, January 10, 2010

Surgeon just left...

He just didn't seem as concerned as the doctor this morning. He said she is reactive to the touch, which is good and also the incision is dry, which means no leaking of spinal fluids. Yeah....
He is the one who calls the shots and says that we can try tol hold her at 3:00 so yes I will be snuggling at 3:01. Hopefully will try to take a picture of her, not me of course! My last post sounded way too negative, (I actually reread quickly) so I am glad the surgeon came by to give his take. She will still need the xrays on her chest and tummy. Most everyone that sees her xrays think something is up. I told him that maybe they could look at her past xrays because she just has very loopy, stretched out bowel loops that fill easily with way too much air that she can't release.

The following is a poem, author unknown that I read on this blog: Please if you have time drop over to see this precious little one who is 3 days old with Trisomy 18. She is doing as well as can be expected but is in need of our prayers.

Once upon a special day in Heaven up above , The tiniest souls sat at God's feet, surrounded by his love. The time was coming, very soon, God said, do not be scared. Your family awaits your arrival, now let us get prepared. And so God looked upon these souls, in mute consideration. He knew the life each one would live, He weighed each situation.

The souls chatted amongst themselves, and wondered who they'd be. They knew the day grew closer; soon, they'd meet their family. How would you like to change the world? God asked each soul in fun. The chance to change a soul, a heart, is held by only one. I'm going to make the world laugh, one soul said with a smile, for laughter heals a broken heart, and helps us through each trial. Then take with you the brightest smile, and share your laughter well. The soul thanked God immensely, and down to earth he fell.

And I'll remind the world to sing, a sweet little soul told the Lord. I have the gift of a beautiful voice; I can hit every note and every chord. You’ll have the gift of music then, a voice, lovely and strong. Share your gift with others, and let them hear your song.

I will show compassion, the next little soul raised her hand. Some people only need a friend, someone to understand. Compassion is a good thing, God said with much delight. To you, I will give mercy. You'll perceive wrong from right. And so each soul shared every thought, their plans, their hopes, their dreams. And God explained that life, it is, much harder than it seems. And as each soul began to leave in a scurry of laughter and fun.

Heaven became quiet and still, for left was only one. Come sit with me my little child, God said with just a sigh. Do you know how many you will touch, in a world left wondering why? Before your life comes to an end, you will know much strife, but you'll teach those who know you, to cherish the smallest things in life. And some may only know you through a simple photograph, they'll never hold you in their arms, or memorize your laugh. Some may only know you through the words they read each day, but you'll do something wonderful, you'll make them stop and pray. The tiniest soul raised her head up, to touch God's firm, strong hand. Father, I am ready for, the life that you have planned. And I will do the best I can without a word or deed. For you Lord, are the planter, and I will be your seed. She could already hear many praying, and although they had not seen her face, they were praying for her safe arrival, they were asking for mercy and grace. What talent do I leave with Lord? What gift do you impart? All that you will need, God said, I've placed within your heart. And so God kissed this tiny child, knowing all that she would be, and whispered as he watched her go...You'll teach them . . . to love me.

- Author Unknown


Janet said...

Oh, my, 3:01 please hurry up and get here!!! I can only imagine the feelings that will be flowing between you and her the second you pick her up!!!
Still praying and thinking of y'all
Please update as you feel like it--I have been addicted to these updates for the past few days!

Anonymous said...

Your earlier post was not negative, only honest and brave. It was the voice of a mommy agonizing over her child's pain. It is the voice of love.

Stay strong, you are Annabel's beautiful advocate. You let your voice be heard loud and clear because you are speaking for the both of you.

We pray for peace, relief from pain, and lots of loving snuggles soon.

That poem must have been written by God for Belle. It says it all!


The Bonds

Anonymous said...

3:00 can not get here soon enough. Step back Tara, Mom gets first hold. Thank you so much for all the updates, it is amazing how difficult it is to be away.

Penny said...

That poem was beautiful and so true! Hope Annabel's feeling better soon and this trial is quickly behind y'all. God bless.

Maya, Mieko and Hana's Mom said...

Keeping your family in our thoughts. Hope your little sweetheart is well soon.

therextras said...

Thanks for the update, Cathy. Still praying. Barbara