Praises...

There are little signs of improvement. I hesitate to say at this point, but I am so grateful for anything that shows some relief for Annabel. She seemed to have more energy today and more playful times. The pulmonary dr. has given her some meds to help her manage her secretions. This should have made her sleepy but instead she woke at 1, 3 and 5 p.m. with smiles and playing pattycake. She never really experience those deep sleeps where she had those low desats. So I don't know if the meds energized her or if she just had a good day. Like I said I will praise God for any upswings. There is a downside to this medicine that we have to closely monitor. It can thicken her mucuos so that she will not be able to move it, also will lessen her urine output (risk of infections), and also slow her GI tract (not good for her already severe constipation). It will probably be a few days to see if this is making an impact. Thank you so much for your prayers.