Saturday, November 1, 2008

Garden Fairies...

Just a brief note to say that the email that was sent to me yesterday from a mom with a similar situation was so well received by the pulmonary doctor. I want to thank her from the bottom of my heart for not just reading and clicking off her blog. Thank you to her for taking the time to write in such detail what she has experienced. As I said I didn't come home from our appt. on Wed. feeling so good about the time it was going to take to find anything out. Within probably one hour after the doctor received the copy of the letter from this mom that I faxed, he called me. The nurse was so friendly and reassuring when I called and said she would give it right to him. He had to have read it, then he took the time to see her blog and then called. I felt he took so much time on the phone with me today and told me we would work together to help Annabel. He said this email from the mom all sounded so familiar to Annabel's issues. He explained so much in detail and actually said that he had said several of the same things just in different words. He even said maybe that the other dr. had used better wording. But today he was so reassuring that I feel very comfortable and excited to be on board with him. He also explained that he has treated trisomy patient before, that he is a pediatrician and is just beginning his pulmonary stint. He also said he was going to be open to any information that I would come across and then we could discuss it. I am thankful that God obviously knew I need this comfort. Along with stress, helpless is not a great feeling.
On a good note, the oxygen is helping Annabel through the night. She seems at this point to not be quite as tired the next day after a good nights sleep.
I am posting a few pics of our Garden Fairy! She can make any garden bright and colorful. We made one house for trick r treat and that was her teacher! When you seen Annabel come alive in her presence you know she has an amazing gift.


19 comments:

May said...

I love this garden fairy! Wish she could fly to my house!

Mrs Redboots (Annabel Smyth) said...

I don't "do" Hallowe'en (Christians in this country tend not to), but I might just make an exception to see my little namesake having such fun and looking so pretty!

She and you remain in our prayers.

Hilary said...

Annabel you look adorable!!!

Kenzie said...

I'm SO THANKFUL for the receptiveness of the physician, and also for the other mama helping out with suggestions as to what worked for them. What a blessing! Annabel looks beautiful and you're right... she would add amazing beauty to ANY garden :)

Love you guys!
Kenzie

Kelly said...

annabel looks gorgeous in her fairy costume! (looks like you are letting her hair grow out a little bit too...getting brave and not cutting it???) i am so glad you were able to connect with R____'s mom. they are a great family and i'm happy she was able to give you information that seemed to "push" the doc into action. hopefully a spot will open up sooner for the sleep study. give annabel a big squeeze from kaiya and me :)

connie said...

Along with stress, helpless is not a great feeling.

What a great way to put it. I completely agree!

Anonymous said...

Annabel's pictures made my day!!!
So glad to so that beautiful smile!!!
I will keep the prayers coming for many more smile filled days for sweet Annabel. And a rested smiling Mom as well!
Janell Ford

Anonymous said...

yea.... such a cute costume. i'm so happy to see Anna smiling so big~ very exciting.
~Lala (Lauren)

Katie said...

I know I don't comment alot but, I am always checking in and thinking about Annabel. I am very excited about how this woman read your blog and gave you some wonderful information. Blogging is therapeutic but apparently much more! I love that little garden fairy.

Kathy said...

Thank you, again (!) to Jesus for answered prayers!!!

Sounds like this doc rocks!!! He will fall in love with our beautiful garden fairy and be her next best advocate right behind her mom!!!

Prayers continue for sweet Annabel and her amazing mom!!!
Love,
Kathy

connie said...

OK, I have another request. Start feeding Annabel some more halloween candy, so she can pack on some pounds and pass some of her adorable hand-me-downs to Mallorie, again! The rate we're going, Annabel will be getting Mal's stuff, and, well, they're not NEARLY as cute as hers!

I love the costume. You have the best taste, always. Annabel's a lucky girl.

The VW's said...

What a precious girl and precious costume! She sure does look happy in those pictures! I'm glad to hear that you are feeling more at peace with everything! I'll be praying!

Katie said...

That is the prettiest garden fairy I have ever seen. Annabel's smile is very contagious. :-) Praying for your sweet girl!

Katie
N.C.

Anonymous said...

Emily and I love the little Fairy, She make any garden a happy place to be in. Hugs and Kisses.
Susan and Emily

Tamara said...

ohhhh i just love her so! That last photo is just so sweet!!! Miss you friend, just coming up for air after a long week! Will e-mail you soon I promise! Love to all!

Anonymous said...

Annabel

We miss you so much, and hope you feel well enough for a visit soon. Edie and Ben

Laurie said...

I love this girl and this costume!! And I love how the blogging world is coming together here, sharing wonderful information and suggestions to help each other out. I am no help in this department, but I sure am blessed reading others coming to the rescue. I am praying for you though my sweet friend. And I pray that hope is replacing helpless for you. We always have hope with the Lord, and He holds Annabel in His loving hands. Have a blessed week Cathy. I love you.

Laurie in Ca.

Penny said...

What a cute garden fairy!!!

Just as I was reading along your blog song Angels among us played and I thought how good is that? God is so good and he sent you just the information you needed from "your angel" of the day.

I am so inspired by little Annabel and how she is making her mark on this world. She is always in our prayers. I hope this new information gives all of you the much needed answers your searching for.

Anonymous said...

I must say, looking at Annabel's beautiful face in those fairy pics makes my heart sing! You should carry those pictures around to all the specialists who think you are crazy! God has such a special plan for her. Keep up the fight!!

Dr B