Wednesday, September 17, 2008

Update 9-16-08

Things are fairly normal here in Dallas. We got a late start to the day, due to being up so late with Annabel. I thought she looked better than the days before so it was such beautiful, cool weather I thought we would venture out to the outlet malls so the older girls could hang out. We had lunch at our favorite, La Madelines!
Off to the outlet mall. Annabel ate her lunch well and then I began to feed her with her tube and she increasing became uncomfortable. By 4 p.m. she didn't want to be held and was very sore and had a huge belly. I called Dr. Prause out pediatrician. Can you believe through all that is going on in Beaumont, he answers personally. I explained what was going on with her and we both thought it could be an obstruction or blockage of some sort. After all, just last week she had a UTI infection and was on her second antibiotic with in 8 days. Of course, it couldn't be that!
Well after some xrays, urine test and some lab work, they found that she has a very ugly UTI (that is what the dr. called it). They said the xrays showed her to have a very distended bladder (funny since she had wet two diapers in ER waiting room and has wet the xray and the table prior to taking the xray). I thought that is crazy that is could be so distended. After four different people thinking that they could get blood, they resorted to drawing out of her finger. Of course, I asked this after the second person tried to get blood out of her arms, foot etc. They said no, had to be out of vein. She showed to be anemic and has some other levels off and we need to have these address as soon as we return home.
The dr. gave her a big shot of Rocephin. This shot has always worked great by the next day when given to her at the hospital. Also, Dr. Prause gives it to her to keep her out if possible. We will now get a 3rd antibiotic in 9 days tomorrow morning.
All this said, I started wondering if we were going to be able to continue the potty. She is obviously not emptying her bladder when going on the potty. We have been told that her bladder is so stretched out from never being able to totally empty it and that what doesn't empty is a breeding ground for infection.
I don't mind cathing her, but she is always so proud of herself when she potty's. I loved how happy it makes her and she knew she was doing something really good! For now, I will have to go back to cathing on a very regular basis. It is really not good for her tissue to continue to do this. The other option is the surgery that they put her tube to just drain out constantly in her diaper. She would never be able to potty train. I guess since I know she has that potential, it breaks my heart to consider that option.
This was so long, just to say UTi infection again!
As of today, we don't know when we will have power. Entergy is showing an estimate that all of our town should be restored by 10/6/08. After Rita, we were the very last to be turned on, don't know if that will be the same. I guess it is where your grid is located. It is easy to be patient, when we know if we return we just stop the progress for everyone. Knowing that the water is no safe is enought to stay away with Annabel. All the older kids are doing great and of course, excited about no school.
Saying thank you to all of the workers, emergency personel, national guard and all others working each and everyday to bring us back as quickly as possible. Praying for all who had much damage, especially the ones who were displaced by Rita and again have to be displaced!


Stacy@hiswaynotmine said...

Cathy-I am so sorry that Annabel has another UTI and all that is before you right now. Praising God for the strength He has given you. I'm lifting you all up in prayer, praying in faith that God has each detail already worked out.
Love in Christ,

Kathy said...

Hi Cathy!

Poor little Annabel. I was wondering if you need to make this decision right away or could you try cathing after she goes on the potty. That way she could have the wonderful feelings of accomplishment and perhaps her bladder could be retrained and hopefully she eventually would learn to totally empty.

In the meantime, praying that the antibiotic does the trick and "our girl" will be feeling herself again very soon!

Glad to hear that you are making the best of a bad situation. Thanks so much for keeping us up to date. Praying also for quicker than expected power turn on and getting you back in your house so you can get things back to "normal" soon.


Mrs Redboots (Annabel Smyth) said...

I agree with Kathy here - let her use her potty and then help her get out any left-overs with the catheter. And, of course, she might want to use her potty for poohing, even if she can't use it totally for peeing.

Hope she feels a lot better very soon, poor baby.

I was inspired by my sons nurse, so I became a nurse. I'm momma to 4 boys one with RTS, one with T1D. I get my therapy and strength through crossfit and take each day as it comes. said...

I hope this medicine clears things up fast. I pray you can make the right decision for annabel and using the toilet.
I wish I could give you a great big hug!
Maybe someday I can???

ANewKindOfPerfect said...

I'm sorry to hear that Annabel has another UTI! They are no fun. :( I agree with the other comments, perhaps cath after she potties, so she can feel accomplishment and yet you can still empty her. We have to cath my Peanut because even though she pees on her own (nowhere near potty training though!) she never empties completely either. Her bladder is also very distended and she gets frequent UTI's. Poor girls! I hope Annabel feels better soon.

The VW's said...

Poor Annabel! I pray that she is feeling better soon and that God will provide your family with the peace and strength needed to weather the storm you are going through! I can only imagine how hard it must be having to stay away from home in these circumstances! I'll be praying!

Yin May said...

Cathy, I am humbled by your resilience in handling not just Annabel's medical issues AND this storm thing all at the same time. You are one strong woman. Keep safe and hope Annabel continues to wake happy tomorrow.