Please pray for this family. Mieko is 4 yrs. old. I have followed her for almost 3 years. She has full trisomy 18 and she could sit up, walk and was the happiest little girl. Her mom is Maya and her father is Shawn. She was their only child and they lived in California. Anytime I had a question concerning Annabel, I could write and she would tell me what they had done, or what equipment they liked. No, I have never met them personally, but I am crushed with grief. She has passed away this morning. I find myself wanting to scream at God and ask WHY???? She has lived a good life and she is 4 years old now, Why???? Lately, I have had several people ask me, "Now that Annabel is 3 years old, does that change her prognosis?" That reality is that it doesn't matter, they are very fragile babies. Their little organs are just not made like ours, they are frail. Mieko, thank you, for all the smiles you gave to everyone and the fight that you faced each day. We will miss you so much and are praying for your mommy and daddy.