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Showing posts with label Trisomy18. Show all posts
Showing posts with label Trisomy18. Show all posts

Wednesday, June 10, 2009

We are home...

See no pictures and not much to report! Oh how I love BORING!!!!!!!!!!! We all know the Great Physician took care of Annabel, but it was not without all the prayers that were sent up on her behalf! Thank you from the bottom of my heart!

Thursday, June 4, 2009

So far, so good...

According to the urologist and the pediatric surgeon she did well. The anesthesiologist also was very pleased with how she extubated. From what they said I don't think we could have expected anything better. Urology was not a big procedure and he says time will tell if this will work. Pediatric Surgeon describe as too much colon and that she was very cleaned out and that is important. He said we will need to watch over the next couple days to see how her tummy responds.

When I speak her name she tries to open her eyes and look at Tara or myself. She rest well if we just leave her alone but when we try to make her stir she seems to become nauseated. I will be updated probably daily but just wanted to let you know the prayers were heard and answer as of now! Thank you all very much!

We are on the PCU and the number is 832-826-0719. We are not suppose to use our cell phone in the room. I check my messages often is you wish to leave a message I can call you back or just email me.

Wednesday, May 13, 2009

It's back...or did it really even go away...



The lab results are in and c-diff is back. When she was in Houston they tested her and it showed positive for c-diff. One week later we were admitted to our hospital here at home and found that her stool tested negative for c-diff. I guess we just assumed being on the antibiotic that it was gone. We finished the 20 days of Fladyl and never missed a dose. Friday was our last day and Monday night she began to show early signs. She is definetly not in as much pain and she is well hydrated. Those were two of her most severe symptoms last time we were in, so we think our pediatrician jump on this and got it very early. The thought is that she will have to just stay on this until her bowel surgery in early June. She is trying so feeds but with each feed she gets tummy troubles, nothing as bad as before. All in all things are better and hoping we can go home soon.
We called her pumonologist in Houston today as she was not keeping her sats up with the Bi-Pap. Being new at this not sure if he wants to add oxygen or adjust her setting on the machine.
On a side note, don't you think we need to request some pink hospital gowns??? Yellow totally washes her out!