The life story of Annabel Grace Shelander... living with Trisomy 18, the struggles along the way, and the triumphs that she continues to have.
Monday, July 28, 2014
The photos from above are from this past week. Annabel was bleeding again out of ostomy even though not as bad as the beginning of the month. So we went in again for a scope and also a scan to see the blood flow that was getting to her bowel. Some of the words describing her bowel have been friable, necrotic,and ischemic???
These two photos are from home where she is most comfortable in her bean bag. Even though for her scoliosis, kyphosis she needs to be sitting in her special Rifton chair. These days Annabel is very uncomfortable sitting up. Also Annabel is holding her nephew Flynn. This is Derek and Linzy's first baby and our First Grandchild. She is very gentle with him.
This was the first of July when she had the major GI bleed and was so ill. Annabel tolerates very little in her tummy so they place her on NG suction in the hospital. It hurts this momma so bad when she retches so many time a day. They have converted most all of her meds to IV as of late. It is easier on her but I still get so nervous having to access her lines so often. After this hospital stay Annabel came home on 4 IV antibiotics, which meant accessing the lines 12 time daily for antibiotics alone, the 4 times for benadryl, 2 times for zofran, 1 for protonic and then up to 6 times daily for pain.
Here is Annabel enjoying some therapy time. When she is feeling well, we try to sit her up and play with her balls. She loves to throw and will catch over and over. How it warms my heart to see her so happy and feeling better.
Not such a great day for Annabel. We love spending time at the beach and in the past love to swing and rock on the porch. It now makes her sick so we just sit out and enjoy there breeze.
This is Annabel on one of her good days with her therapist Meg. She sure loves Meg... On a great day we can get Annabel to bear weight.
These two photos above are our Grandbaby Flynn David. How we adore our first grandchild and Linzy and Derek are more than generous with allowing us grandparent visit. It pays to live right around the corner. he is really beginning to smile and he is a very good baby!