Thursday, June 5, 2014

Where to start.....

Please forgive me for being away. So many have stood by our side for so long with your constant thoughts and prayers. So many times when I updated it was through Facebook, mainly because it was quicker and easier. I love to post pictures and I was having so much trouble on my new apple computer and just became frustrated.
 Tonight I couldn't get a signal on my computer where it is easier to type so this update will be brief.
In October Annabel had her total colon removed. After this she had 5 very successful weeks of eating through her g-tube. She continued to live life free of a central line until this past Dec '13 when her stomach totally stopped working. The first of January she had her central line placed and continues to struggle with eletrolyte issues, obstruction issue! vomiting and dumping. She is suffering ongoing liver damage. She is having to be placed on almost all IV medications due to intolerance of the smallest amounts going into her g-tube.
If any of you still follow her blog and are also on Facebook, please message me and you can see more pictures of Annabel.
We are having some tough conversation concerning Annabel's plan of care, basically to keep Annabel as comfortable as possible. This isn't anything definitive yet but I will try to recap the last several months and get my daughter to help me post updated pictures of sweet Bella!

8 comments:

Bee said...

Thanks for the update would love to connect through Facebook to see the updates x not sure how to find you?

Bee said...

Have emailed you x

j waller said...
This comment has been removed by the author.
j waller said...

I am glad to see an update on sweet Annabel. I check often and have just been hoping she was doing ok. I have watched your blog for a long time and don't even recall how I came upon it. Will continue to think of you all and pray that God will give the Doctors, you and all involved the wisdom to know what is best for sweet Annabel.

Jan Jennings said...

I am so glad to see an update on your precious Annabel. I have been following your blog for several years through Magdalana Grace Roberts from Mississippi. I am in awe of the daily struggles that you and your family must face and yet you remain so upbeat and positive. From time to time I have felt like a stalker because I don't know you but I am so amazed by Annabel's story. Thank you for sharing.

Anonymous said...

So sorry that your journey has reached this difficult stage. We had no idea - I think I am the only person in the world not on facebook. Love and prayers to all!!! We love you and are so sorry that things have gotten so medically complicated. xoxo The Bond Family

Heather said...

I too have been checking in on a regular basis. It's nice to see an update though a difficult one. I'd love to follow you on Facebook too. Could you leave me a name on my comments, Thanks.

Anonymous said...

I am also unsure how to find you on Facebook.