Not sure if this will make sense but I will try...Annabel was admitted with a central line infection of gram neg rods and line had to be pulled on Monday. When she returned from recovery the nurse on floor noticed a high heart rate immediately and then heard a gallup but different rhythms. So then doctors were coming from everywhere. Assessment was done quickly and she was moved to PICU. She was in septic shock and respiratory failure. We were told her lungs were very sick. Tried several things then she was intubated and placed on vent. Her lungs just got worse and the fever the last two days have never came below 102.4 until today. Tonight they are going back up but they didn't stay up all day. Another positive was that she was voiding better today. Not enough but better. yea! Her blood pressures have been too low and she needed more help but today they could decrease the help a bit and her pressures have been a little better, not great but a little bit better. yippee! She is going longer periods of time without needing to be bagged, thank you Jesus!
These terms I use are not from me but from what the doctors describe to us. Like she is in fluid overload. Today the fluid began to pool in both the lower lobes of her lungs. Actually they expected this so I was not too discouraged. When they showed me the X-rays this morning
Instead of this whiteout from yesterday, I could see through parts in the upper right lung. To me I thought it looked better they say unchanged overall, I guess because of the fluids.
This afternoon late Infectious disease came in for consult concerning her gut. The entire top half of gut is filled with very distended bowel loops. This may require surgery to remove. Annabel is already considered to have dismotility, pseudo-obstruction, neurogenic bowel, and now they are saying she is short gut. I said nonshe just had a resection of her bowel and they looked on records and said she is short gut to the removing of part of her gut. So basically we are praying no surgery will need to be done on the distended loop of bowel. At this point due to the c-diff finding and continued fevers they say she has severe colitis.
THis is probably rambling, misselled, poor punctuations or some parts maybe misunderstood. It is always so much to take in.
I have read each comment and wish I could respond to each one. I just can't right now. If you call me on the room phone and I cut you off due to doctor coming in then forget to call you back please forgive me. If you text me and I don't respond I may have forgotten but I do read my text. I am also reading my emails and have a hard time returning them. One thing is for certain that I find so much comfort in know that so many people are praying for her. Thank you for supporting us with your comments, thoughts and prayers
19 comments:
Just checked in one more time before going to bed. Praying for your sweet girl!
im praying for her...and you and your family...
i may be half way around the world, but she is in my thoughts and prayers...
Sending love and best wishes to Annabelle and all your family from Australia x x
We understand you are tired and overwhelmed... do not apologize for poor grammar. Just focus on little Annabel and prayer.
J Muhlnickel
Still praying!!
Ellen
Yay for little steps in improvement! Praying for her and you lots! Thanks for the updates! Love, Hugs and Prayers!!!
Please try to sneak in a hug and kiss for me today. Edie
Just checking in for any new news on Annabel. Praying for her all day long and for you too sweet Cathy. Hoping you get rest when you can. Love you.
Love and Hugs, Laurie
I think I speak for all of us that no one is expecting return calls, texts or anything. Rather we just want you to know how much we are praying for Annabel and you.
I just heard a quote the other day. "Most people pray as a last resort when in fact prayer is THE single most powerful thing we can do!"
Know we are praying around the clock! Thanks for the update, Cathy. Love you girls!!!
Keeping Annabel close to my heart! I hope that as the hours go by she continues to get stronger and won't require surgery!
XOXOXOXO
Not rambling at all. There are certain meds that they can give to calm the colitis. Maybe after everything calms down for Annabelle. Caleigh is on Sulfazalazine and it seems to help the flare ups. I'm sorry to hear about the C-diff. That has to be painful and scary for you.
We will be praying for lots of urine, no more bowel surgery and decreased fluid while Annabelle fights off this infection.
I know where you are mentally. I've been there. I'll be praying for you and your family as well.
You are doing a wonderful job right now being a Mommy, no one expects perfect posts! We just love to see them when you get a chance so we can keep praying! We are all reading your blog to keep up with Annabel and how she's doing because we love her right along with you. Not a single person on here reads this blog because we care about grammar! :)
Keeping you all in our prayers this afternoon!
I am friends with Connie, Mallorie's mom. She told me about you and your sweet Annabel. I wanted to tell you that I'm praying for you and your family and of course your precious girl. Praying for a miracle for her and for the peace of God to fill your hearts.
Oh sweet Annabel. I am SO sorry that you are so sick! Emily just went through similar things with her last line infection and it was SO scary. I pray that your infection clears and your lungs dry up a bit. Praying for you, sweet girl!!
Cathy...praying for Annabelle and your family. Know God is holding her and all of you as you walk through this time. Rest assured in the prayers that are being said. Blessings, Tammy Mansveld
Praying for that sweet little girl and you Cathy and the rest of the family.....
Sending prayers your way. Get better soon sweet girl!
I'm so sorry that she is so sick. I am praying for her and you and the family. Also for all those taking care of her.
Send me an email if there is anything that I can do for y'all. Love ya,
Emily
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