It always feels so good. We came home yesterday but I didn't stop to blog. Thank you to everyone who lifted and carried my girl in prayers. We felt it each day and are grateful.
She is home, weak, tired and doing things she didn't go into the hospital with. The TPN is definelty showing effects on her liver. Somethings are really out of wack that haven't been before. With this horrible antibiotic and the TPN/Lipids most days she was losing two IV sites. She is bruised up and poked and prodded. But we are home.
We considered having a run to the ER tonight. The nurse nor I liked how she looked or sounded. Since Monday she has been keeping her mouth opened, drooling heavily,constantly moving her tongue in her mouth, making a quiet constant sound, all the while rolling her eye back and keeping them there. It looks very strange. I am trying to see if it the use of much Benadryl due to her itching while in the hospital, or possible side effect of the neurontin, maybe mucomyst. She looks pale/yellowish skin, white of eyes have yellowish tint and she is so weak. Tonight she began crying in obvious pain (unlike Annabel) and we didn't know what to do. Anyway, will keep you posted and praying to stay home through this holiday season.