I know I need to make a post, but I really don't know much. She had a very rough night. Yesterday evening we had some smiles and I always look for upswings in her behavior to give hope that we are on the right meds or that the diagnosis make sense. Annabel become very uncomfortable around 1:30 a.m. So I felt like I needed to hold her. I let her lay on my chest to sleep and of course she alarmed almost continuously. She stayed fairly uncomfortable until around 5 a.m. Dr. R came by who is with Dr. B. We absolutely love, cherish and adore Dr. B but you really can't go wrong in this practice. So today was Dr. R's day for rounds. Seems everyone is agreement this is an airway issue. So along with her two meds for breathing treatments he added another one to be given every two hours to target her airway. He also began a steroid to target anything going on in the airway. He upped her oxygen since nothing was enough during the night. He ordered cultures to be done on urine.
So today she has basically slept through the day which maybe what her little body needed. She was on 4 liters of oxygen and still alarming too much while asleep. When she is awake she is on 3 liter of oxygen, even though when well doesn't require oxygen. They are having to deep suction and everything is so thick. Tonight I had to return home to get her Robinul to begin to see if we can thin her mucous. Yesterday her white count was up, but not really much in urine. Tonight her white count is down some but the urine is up.
My prayer is that tomorrow there will be more interaction with us. That she will want to be held and not tire so easy. That her oxygen needs will decrease especially when awake. The picture is not the best but basically that describes her day. Hoping to post something positive tomorrow.
There were some new visitors today who either commented or emailed me and I just wanted to say thank you that offer words of hope and prayers for Annabel. I will try to post something earlier tomorrow.