Everything is running a little behind today except us! We were here on time actually 20 min. early. They brought her back like 6:15. Her surgery was scheduled for 7:30. They took her back at 9:00 a.m. still with no IV. The neurosurgeon talked with us and I was surely under the impression that they would just go in and clip her tethered cord. He explained this is a major surgery and that it would take 2 1/2 to 3 hours once they began. Then she would be in recovery for a while of course. They had some concerns and considered cancelling the surgery due to her UTI infection. But it was decided to proceed. I probably would have cried since I am so ready for this to see if it helps a multitude of her issues, especially the oxygen sats. I have tons of confidence in all the doctors involved which is a great feeling.
The MRI of the brain that was done Tuesday did reveal a cyst. We are going to watch this for a bit as he is not sure if or what this is affecting. The tethered cord repair and the cyst are some common issues with Trisomy 18 children. We are new to him as a patient so I am sure we will talk more in follow up visits. So thank you for your calls and all the prayers for Annabel.