I feel so sick. Brenda just called and they have Brianna back in the hospital. Please pray they get Brianna transferred to a much larger facility. She is having more spells turning blue and not getting enough oxygen. Brenda talked with the pulmonary doctor and he said she definetly has pulmonary hypertension and Brenda seems very concerned with what she heard. If you are just reading about Brianna for the first time she has full Trisomy 18. She has turned two recently.
The immediate concern is to get Brianna to another hospital. They were at her moms and the hospital is a small community hospital. My heart is breaking for Brenda. I will keep you posted when I have heard more from Brenda. She is having trouble getting a signal to go through.