She had a good night so of course mommy feels good today. I am hoping that her steriods have leveled off in her systems. Her breathing is not the best but we are doubling on her treatments. We are hoping that she will begin to desire her solids today. She is not really in the mood to smile for pictures but I am sure that will also return very soon. Also very thankful that today her tummy seems to be more comfortable.
A few weeks ago I posted a picture of Brianna, Racahel and Annabel from our weekend in Houston. Just to catch those up who didn't know, Brianna's parents Brenda and Jerry were coming to Texas for business. Brenda and I had some correspondence on occasion about our girls. So I was so surprise when she emailed me and ask that we get together. It was also set up and we decided Houston was a great place. Prior to all this, Texas Children's Hospital had given my name to Racahel's mom, Sarah and she called me to ask questions and discuss some issues concerning our girls. So I made a contact with her and she was so excited to meet up with us. It was a wonderful evening just playing with our girls in the hotel until late into the night. Brianna's dad, Jerry took care of ordering us a wonderful dinner and having it delivered to the hotel so we could just continue to enjoy each others company. Sarah could not meet up the next day due to her job, but Annabel and Brianna were able to spend more time together and it was so hard to let them go! In July is the SOFT conference (Trisomy) in Virginia and Brianna's family will be attending, YIPPEE!!! Now, I would love for Racahel's family to be able to attend also and Sarah I do plan to contact you very soon to see if that is a possibility.
And for you May, Vera's mom, I would love it if your family could come. Ok, for any of you that don't know Vera's family lives in Singapore so I do think they would have a good excuse not to get there. I don't push very many things but this is one that I am passionate about. I have gathered so much information there, not only from the professionals but so much from the other parents. It is truly like a huge family. One of the very informative things is that we can choose three clinics(specialist) who we can visit with and they can give their suggestions. Then there is also the workshops that we attend for two day (our babies are very welcome to attend with us and no one cares if there is crying, grinding of teeth or whatever noises they can make). For those that need a break there is also a daycare set up at the hotel with nurses who are very skilled in caring for our babies. The lobby of the hotel that we stay at are transformed with all of these beautiful little ones and their families.
Brianna 21mths, Racahel 9mths, and Annabel 3 1/2yrs.