Tuesday, April 29, 2008
There are no words to explain how I felt this morning when I cathed Annabel. Yesterday was the first day without antibiotics. When she went to bed her urine was clear. This morning her urine looks like sewer water. It was very murky and brown. I truly could not believe my eyes. She did cry out several times during the night. She has been doing that and I was not sure if it was her tube feedings making her uncomfortable, so last night I discontinued them. I did place a call to Dr. Roth (urologist) at Texas Children's Hospital but have not heard back. I am sure he will not hesitate to express his frustration also. I was so looking forward to being off the antibiotics so that her tummy could possibly return to normal. I really felt with the IV antibiotics, the antibiotic wash 2 times daily of her bladder, then the oral antibiotic we would be infection free for a longer period of time.
She did not make her full day of therapy today. She was super tired today and we just brought her home for a long nap. Sorry, but that is a lot of whinning. I want to thank my daughter, Tara, who took her to her therapy and babysat with her today so I could go to Houston. She is my right hand and I don't know what I would do if I could not just call upon her anytime. She always is willing to reschedule whatever she has to take care of Annabel.