Tuesday, April 29, 2008

Pure frustration...



There are no words to explain how I felt this morning when I cathed Annabel. Yesterday was the first day without antibiotics. When she went to bed her urine was clear. This morning her urine looks like sewer water. It was very murky and brown. I truly could not believe my eyes. She did cry out several times during the night. She has been doing that and I was not sure if it was her tube feedings making her uncomfortable, so last night I discontinued them. I did place a call to Dr. Roth (urologist) at Texas Children's Hospital but have not heard back. I am sure he will not hesitate to express his frustration also. I was so looking forward to being off the antibiotics so that her tummy could possibly return to normal. I really felt with the IV antibiotics, the antibiotic wash 2 times daily of her bladder, then the oral antibiotic we would be infection free for a longer period of time.
She did not make her full day of therapy today. She was super tired today and we just brought her home for a long nap. Sorry, but that is a lot of whinning. I want to thank my daughter, Tara, who took her to her therapy and babysat with her today so I could go to Houston. She is my right hand and I don't know what I would do if I could not just call upon her anytime. She always is willing to reschedule whatever she has to take care of Annabel.

7 comments:

boltefamily said...

I will be praying for sweet little Annabel. I cannot imagine the frustration you must feel right now. I will be praying for all of you, knowing God will take care of each of you!

Much Love,
kristy

Anonymous said...

I am so sorry. Like everyone else I was so hoping all the antibiotics would offer her relief. I can not imagine your devistaion. Please do not feel the need to apologize or even see your words of concern as whinning. This would be a huge disapointment for anyone in this situation.

Always in My Prayers

Edie

Jessica mommy to Alex/ RTS said...

tears came to my eyes when i read about her urine. I know what it is like to hope for moving forward, to feel like you are moving forward, and then to find out you havent budged.
Im so sorry, and I will lift you up in prayer tonight.
Alex would love to teach Annabel is breakdancing skills. then they can go on a tour and show off for everyone:)

Carol Ramsey said...

Again, just know that we continue to pray for you and Annabel and your family. I watch her pictures on the slide show and I find myself sitting here smiling constantly! She just makes you happy! That infectious smile of hers! I miss seeing ya'll, but know that she is working hard to feel better. Give her a kiss for me! Carol R.

Holly said...

Oh Cathy, I am so sorry to hear that Annabel is still having urinary tract problems. It has to be so frustrating. I am praying that someone can get to the bottom of this for you.

And, about the whining, go right ahead and do it, just for a minute, then suck it up and get back on with your life ;-)

love,
Holly & Morgan

Laurie said...

Oh Cathy,

I am so disappointed and frustrated with you to hear that the meds didn't clear this up. I am praying for your heart to be calm and for Annabel to get better. God bless Tara for being such a helper, she is to be treasured. And Cathy, you are not whining here at all. This is life as it is happening and you let us know how to pray specifically for you. I never see your need as whining!! Praying for you sweet friend and may solid answers come soon.

Love and Big Hugs, Laurie in Ca.

Hilary said...

Oh Annabel...I am sorry that your infection is back! I can only imagine how dissapointed Mommy was!Thinking of all of you and hoping for a better day :)