I want to apologize for yesterdays post. I was feeling like I needed to make an update, but wasn't feeling very positive. I am going to try to use that as a guideline. The old saying if you can't say something nice, then don't say it!
I was tired, grumpy and sooooooooo frustrated.
God is so awesome! I truly believe God only gives us the grace for today, not tomorrow! I sometimes (quite often) get caught up in the "how can I keep doing this" thing. Well, he gave Annabel and myself a good night of sleep, thank you Jesus! Then this morning I checked my work emails, personal emails and then the blogs that I follow. Right away I felt ashamed of my post from yesterday. As I read about these precious little ones who have gone to their Heavenly homes and the ones awaiting birth or that have just been born, I realized how all of these families would trade places to have their babies in their earthly homes. So as I ask God to forgive me for my whinning and asking that whoever read yesterdays post, just tell me to get a life and be grateful for what I do have.
I do thank God everyday for all of my children, family and friends. But I am especially grateful for Annabel who is a constant reminder of who is really incharge of all that happens in our lives. I chose a picture of when she was very young as my constant reminder of how blessed we are to have been given so much time. I must continue to try to make the very best of each of Annabel's days!
Thank you to all who continue to pray for her! I have also added Magdalena's link to the sidebar, also Baby Vera who is a little over 5 months with Trisomy 18 and Baby Boy Zuckero who will be born this month with Trisomy 18. All of these families need our prayers.
10 comments:
I dont think you need to apologize. This is hard work, and I believe the hardest thing on earth is to be in constant care for someone with special needs, even when you love them more than anything, its hard hard work. Its ok to be tired!
The GI appt. went well, andwouldnt you know it he prescribed us Regglin, Im not sure about using it yet.
I read a passage from a book I dearly love entitled "God Calling", and I want to share some of it with you.
"I have promised Peace, but not leisure, heartrest and comfort, but not pleasure. I have said "In the world ye shall have tribulation"; so do not feel, when adverse things happen, that you have failed or are not being guided, but I have said "In the world ye shall have tribulation but be of good cheer, I have overcome the world."
So learn of Me, the overcoming Power of one who, though misunderstood, forsaken and crucified, could yet see His Work had not been affected by these things.
Let this thought comfort you. Amid failure, discord, suffering, even now may friends and angels be prepared to sound (your) chorus."
The friends and angels on this board did sound your chorus, with advice, support and most importantly, LOVE!
Your path is hard, and to reach out to others is to allow others to show their Christian love for you. It is not weakness to show the difficulty of the journey.
To the families who have new angels facing this condition, and to those expecting the arrival of their angels on earth, Annabel's journey is a lifeline. To present it honestly, through the trials and triumphs is truly doing God's work.
Please know you are loved, and a hero to so many!
Love,
Lisa
Amen and HooRaw for Lisa's Comment! Don't you go apologizing for being transparent... most of us feel the words of a fellow trial bearer and appreciate the honesty! Loving you through all this... do not grow weary in doing good my friend! Praying for you, Tam
Don't feel sorry Cathy, we get frustrated because we're human. Otherwise, we'd already be angels right? We must falter once in a while, so we have the chance to pick ourselves up. It's just nature's way...working in cycles, highs and lows, ups and downs. You and your family are amazing in caring for Annabel and you've been an inspiration to me. btw, about the reflux - sometimes the tube shifts when Vera plays with it with her tongue. It irritates the throat and causes the vomiting. Try to ensure tape is always secure to minimize movement of tube. Also, I've found that feeding Vera when she's sleeping guarantees no reflux.
Cathy, dear, there is no need to apologise. In fact, rather the reverse. It does no good to pretend everything in the garden is lovely when it isn't. Be honest with yourself and with your readers, and when things go badly, tell us, so that we can bear you up in our prayers.
If you don't let us know when you are tired or hurting or just plain fed up - and it happens - how can we pray for you? You are every bit as precious to God as little Annabel is, and you need our prayers just as much as she does!
Cathy,
Everyone has a bad day now and then. Everyone is tired and cranky and has very little good to say about anything. You need to be able to vent. You need to be able to share the good and the not so good. I think most everyone who reads your blog understands that.
It is amazing what a little sleep will do for you. One Sunday, not too long ago, I laid down at about 5pm for a little nap. When dh came in the room I told him I had decided I wasn't getting up again that evening. He would have to get Morgan his supper and get him to bed. At about 9pm dh came into the room to tell me it was 9 pm. I guess he didn't believe me earlier. I did get up, ate a sandwich, did a crossword puzzle and went back to bed and back to sleep. The next morning when the alarm clock went off was the first time in probably years that I didn't still feel tired when I got up.
I hope you will continue to blog away, no apologies needed.
love,
Holly & Morgan
Hi Cathy!
Thankyou for stopping by with the Anniversary wishes! I am always glad to read that Annabel is doing good..As a Mom I feel like we all have our good and bad days..it's ok to want time for yourself. That's being human I am a Mom :) Have a great week
Cathy-
Sweet friend... we all have hard days. Yes, we are all reminded of God's grace and mercy each day... but we still can get caught up in the moment of right now and of how things aren't as we had hoped or planned. You know we all love you and Annabel and continue to be so amazed at how God is using her little life and your precious family to tell her story! All of us have those days :)
Thanks for checking in! We still need to try and get together soon!
Love lots & prayers,
Kenzie
Thank you for visiying mt site.
I'm sorry about Annabel.
I know it is very hard for mother to see her child is suffering.When my second son was hospitalized,I was really upset even though it was only a few days. You don't need to apologize.
I hope Annabel will be well soon.
Cathy,
I also totally agree with Lisa - she pretty much said it all!
I read and reread the blog that you felt was "complain-ey" and I just don't see it. I think you stated some medical facts and then the wonderful moms out in the blog-world who are taking the same journey offered you some great ideas to try (if you haven't all ready). I am praying one or some of them will work for her.
You would have done, and do, the same for others. How can others be helpful or encouraging if you never seem to need it? Please let us do what little we can for you and your sweet Annabel! Let us build you up so you can be the most amazing mom, because you truly are!
Annabel is such a gift and you and your family are the perfect family for her, chosen by God. Lean on Him, Cathy and please lean on all of us. We love you and are here for you and for precious Annabel!
Praying for sleep and sweet moments for the two of you to share.
Love and prayers coming your way...
Kathy
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