Hopefully tomorrow we can hold an Angel...

Tomorrow will be day 2 and if the doctor says so, WE CAN HOLD HER! Poor baby girl she just doesn't understand why we aren't picking her up. Her eyes have spoken a million words today. Words of pain, confusion and just longing to be cuddled. She did fairly well during the night. No morphine until this morning and then we gave Tylenol then had to give morphine again. She moved her legs fine yesterday. The doctors and nurses in recovery and her in PCU were all pleased with how well she moves them. But this morning we noticed that they are very stiff and if you try to move them her whole body whences in pain. The good thing is that if we touch her very sensitive little feet she moves them like it tickles. So we know there is feeling there. Because this is progressive since this morning, they have called the doctor and they will be coming by.

The picture of Annabel and her pretty pink flowers from the West family is above. What we didn't know was that no live flowers are allowed her at TCH. I am so said because they were such beautiful daisies and they went through all the trouble to bring them to her on this freezing cold day! Thank you to Kevin and Michele for the endless amount of meals you prepared, Vivian's gold and the sweet, pink flowers.

Hopefully tomorrow she will be gently upright with some precious, happy smiles! We he says we can hold her we may never put her back down. We appreciate the prayers and we are so grateful that she has done this well.

Quick update...

This will be short be said I would update. She is still doing well. She is not resting but for short periods of time. The numbing in her back is wearing off and she is obviously becoming more uncomfortable so will probably do some pain meds soon. It will just affect her sats so we are trying as little as possible but will when need be. I will update in the morning. Sorry for my wording but with her having to be flat on her back she loves us by her side.

Let me say again, that I am overwhelmed by the comments, text, emails and facebooks...
Several people have email because not comfortable writing on blog and told me how Annabel has touched their lives or inspired something personal and it reminds me of her true purpose here on Earth. She truly doesn't need words to get her message across! Thank you and have a good night.

Amazing...

Again, she is amazing! She comes through with flying colors...This will be short.We are in PCU and she is resting peacefully. I think she looks at us and wonders why we can't pick her up. She has longing in those beautiful eyes. According to the neurosurgeon, everything went well. She tolerated the surgery as well as he expected. Now only time will tell what issues it may have resolved. I just want her to be free of pain. She stayed in recovery a little longer due to nausea and just a few low sats but overall she is doing well. They want her to stay in PCU to be monitored. My guess is if she has a good night maybe by tomorrow go to a regular floor. She has to be flat on her back for two days. They doctor says he will visit with us on Monday and then I think if all goes well we may get to go home. YEAH!

Thank everyone for the many calls, emails, text and comments. One thing that is sure is that with Trisomy 18 it is hard to be put to sleep and she continues to come through. It is only through God's graces and prayer that she does so well. Will update maybe later tonight.