The life story of Annabel Grace Shelander... living with Trisomy 18, the struggles along the way, and the triumphs that she continues to have.
Thursday, April 21, 2011
Ethenol locks
Does anyone have any experiences with ethenol locks place in the central lines? If you do please email me or write a comment. I was wondering about protocol when using the ethenol locks, changing the injection hubs, flushing, etc. Thank you!
Wednesday, April 20, 2011
Weekend with our girls....
The wedding for Derek and Linzy is drawing closer. They will be married the middle of June. We will be entering a new phase of our lives with a daughter-in-law. Sweet Linzy comes from a small family that is probably fairly calm into our big, crazy family.

The picture above is of Annabel and her friend Johnny. Since Annabel hasn't been well she has not been attending PT. Yesterday was her first day back and Johnny appointment followed right after hers. She knew she knew this cute boy,you could just see it. She has been harder to make smile and to get those belly laughs out of her, but within minutes Johnny had Annabel laughing out loud. I wish I would have had my video camera with us.
The picture above is of Annabel and her friend Johnny. Since Annabel hasn't been well she has not been attending PT. Yesterday was her first day back and Johnny appointment followed right after hers. She knew she knew this cute boy,you could just see it. She has been harder to make smile and to get those belly laughs out of her, but within minutes Johnny had Annabel laughing out loud. I wish I would have had my video camera with us.As far as her health she is ok. I think we have see some good come from the transfusion, so I am grateful for this. I am also, grateful that she has been home from the hospital for almost a week. She hasn't been on antibiotics for almost a week. Her fevers still run low grade from like low 99's to a little bit over 100. She get tired easily and is uncomfortable somewhere but hard to pinpoint exactly where. She is growing so fast. Just in March she was down to 28lbs. and looked so small and now she is over 33 lbs. I am trying to stay calm about all the weight because she becomes so heavy due to the bulking up from the TPN.
Wishing everyone a very Blessed Easter Season!
Thursday, April 14, 2011
Still no growth....
So it looks like we are not experiencing a line infection and I can't tell you how relieved I am. The fact is that something is going on with her but it doesn't justify being in the hospital. We all agreed that if something else happens we can easily return. So we are being discharged today, maybe late tonight. She has had blood drawn for type and cross-match, so when the blood transfusion is completed we should be good to go. Thank you for continued support and prayers. The Benadryl is keeping Annabel pretty drowsy as you can see from the picture.
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