Cathy:
After meeting with a new doctor, I really thought we would find some hope. Apparently not. Be are told that because of our baby's diagnosis, there isn't a doctor who will touch her. Our little girl has full T18 and a diaphragmatic hernia. In healthy babies, they would perform a hernia surgery almost immediately to relieve the pressure on the lungs so the baby can breathe. But with a baby who has T18, forget it. I am crushed that the doctors won't even give her a chance. That's all I want for her - to have at least a chance at life, and we are being turned away meeting after meeting. I even got a few phone numbers for Dr. John Carey, if you have heard of him, but haven't heard back from him to see if he can shed some light on anything. I hate to give up, but maybe we just don't' have the resources to get what we need. I am at 30 weeks now, and the doctors are fairly sure she will come early, probably anytime before 37 weeks. I feel like I am running out of time. If you have any thoughts, let me know. Otherwise, thanks for listening. I know you understand.
Kathleen
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Above is a picture of Annabel. Just a reminder that this is what we were told had no chance at life. Take her home and love her, she will die! SHE IS INCOMPATIBLE WITH LIFE! God gave her life and he must be the only one to take that life. Praying that someone will be God's hands here on Earth!