Returning home...

It always feels so good. We came home yesterday but I didn't stop to blog. Thank you to everyone who lifted and carried my girl in prayers. We felt it each day and are grateful.
She is home, weak, tired and doing things she didn't go into the hospital with. The TPN is definelty showing effects on her liver. Somethings are really out of wack that haven't been before. With this horrible antibiotic and the TPN/Lipids most days she was losing two IV sites. She is bruised up and poked and prodded. But we are home.
We considered having a run to the ER tonight. The nurse nor I liked how she looked or sounded. Since Monday she has been keeping her mouth opened, drooling heavily,constantly moving her tongue in her mouth, making a quiet constant sound, all the while rolling her eye back and keeping them there. It looks very strange. I am trying to see if it the use of much Benadryl due to her itching while in the hospital, or possible side effect of the neurontin, maybe mucomyst. She looks pale/yellowish skin, white of eyes have yellowish tint and she is so weak. Tonight she began crying in obvious pain (unlike Annabel) and we didn't know what to do. Anyway, will keep you posted and praying to stay home through this holiday season.

Out of TCH...admitted St. Elizabeth

Her surgery was hard. Surgeon said very hard placement with much blood loss. Had to stay there overnight with discharge back in Beaumont to our favorite hospital. Will update little later. Thanks for continued prayers.

Surgery at two...

Just quick update before I pack my computer up...she is scheduled for two o'clock for central line. If all goes as expected we are being released and will be admitted to St. Elizabeth's tonight. It is amazing even though I am not going home, I totally feel like I am! Also, Dr. B is in the hospital today and tomorrow. We probably won't be in too long and then go home on antibiotic with our home health nursing.
She had a good night and I am watching her laying in the bed and clap her hands. I think she feels my joy in being released from here.