Thanksgving Wishes....

To everyone we wish a very Happy Thanksgiving! Hope your day is peaceful and relaxing...Gig 'em Aggies..

Universal Child...

This song was sent to me by Emily's mom, Sara. I listened to it and cried. Then yesterday morning I heard Annie Lennox sing on Good Morning America and she sang Universal Child and I cried again. Today I purchased the CD and yes the tears fell again.

With each line of this song I think of Annabel. It is my constant reminder that we are her shelter from the storm, from the pain and hurting. I don't have to do anything heroic, I just have to be here each day and keep her safe and warm. I can imagine how this song rings true for so many of us who experience this life for our children. So just sit back and listen to the beautiful words being sung...

The last two days have been great for Annabel. She is off the IV antibiotic and just to finish the dose we have to give her benadryl due to her itching and clawing at herself. She was drug up for several days and we just couldn't see this happy Annabel. I am so thankful for how good she has been feeling. Also, I began with a small amount of breast milk into her tummy. I know until I try giving her something in her tummy one last time I can't accept the fact that she is TPN/Lipid dependant. So for a week now we have been bolus 3 -4 feeds daily and doesn't seem to be experiencing any discomfort. We are watching for distention, bloating and nausea but she seem to be doing ok.

http://www.youtube.com/watch?v=0nInCpOvDC8
UNIVERSAL CHILD

How many mountains must you face before you learn to climb.
I'm gonna give you what it takes, my universal child.

I'm gonna try to find a way to keep you safe from harm.
I'm gonna be a special place, a shelter from the storm.
And I can see you, your everywhere, your portrait fills the sky.
I'm gonna wrap my arms around you, my universal child.

And when I look into your eyes, so innocent and pure.
I see the shadow of the things that you've had to endure.
I see the tracks of every tear that ran ran down your face.
I see the hurt, I see the pain, I see the human race.
I can feel you, your everywhere, shining like the sun.
And I wished to God that kids like you could be like everyone.

How many tumbles must it take before you learn to fly.
I'm going to help you spread your wings, my universal child.

I can feel you everywhere shining like the sun.
And I wished to God that kids like you could be like everyone.
And I wished to God that kids like you could be like everyone.

Annabel loved wearing my reading glasses. It made us wonder if she saw more clearly with glasses.

Looking for Lissa???

Thank you to everyone who reads and comments on Annabel's blog. Sometimes if you aren't registered with Blogger.com when you sign your name I can't retrieved your information. So to all who comment on and off the blog your encouragement means so much to me. The prayers are priceless as you all know that is why Annabel is with us today. God hears and He answers prayers.

So Lissa Gressley commented yesterday on my stressed out post. Lissa if you read this you commented on the spiral tubing for the broviac line. If you can contact me again either on this blog or my email which is suzyque92@hotmail.com. I would love to find out more about the tubing and understand how you use it. This blog has been a huge source of encouragement but also medical advice and so many wonderful suggestions. So please if you read this I would love to hear from you.

So to anyone else out there who may have some advice I never mind reading and maybe implementing something that has been helpful in your life with your child.

I will post more pictures from our day but she is pretty drugged from Benadryl. Annabel has been itching so much and clawing at her central line. She usually never plays with her button, lines or really anything. So we are assuming maybe the Gentamycin is giving her some sort of reaction so thus the drugged look. But with the help of our nurse we did get a small smile...enjoy!