Surgery scheduled...

Annabel will be having her surgery, loop ileostomy on July 17th. There are two ways he will approach this and we are hoping the more conservative method is what will work. She will end up with a bag. I had so many concerns about this surgery, including did she really need it. In the last couple of weeks Annabel has been going through some very painful episodes and her baseline is getting lower and lower. I know she can't go on this way or basically she would lay in her bed all the time. We still get some happy, wiggly times but they are shorter and much less.
So next week, I am ready. I pray that she tolerates the surgery well and that we will be home by the weekend.
I will be updating from the hospital when possible. Again, thank you for your continued prayers. 

Good times and good news...

Just a quick video to see how Annabel is feeling better and more energy.We are so thankful. When she came in her hemoglobin (was 7) and is now over 10. Higher than her baseline. We are going to have to watch it to see if she has a bleed again. Her stool from early morning showed negative for blood. Some of the thinking is that she possibly has an ulcer and will be treated accordingly. There maybe a scope again soon to see but it will be outpatient. She did have a nasty looking urine this morning and waiting on results to see if it is anything but it will not keep us here. They are trying to arrange for someone to come put her stitches in her picc line (they have come out) and then hoping to be release this afternoon/evening. Her doctors have been awesome and they know without me saying how anxious we are to return home. 

Filler' up....

Annabel was admitted last night to the hospital in Houston due to her low blood levels. Also yesterday at home her stools were very dark. When they tested her stool her at the hospital they found it to have blood. So today they are tanking her up. This should give her some of the energy she has been lacking. Yes she will still need surgery but that is not why we are here. We are really wanting that scheduled with a certain surgeon and anesthesiologist. They are hoping to identify where the blood is coming from or see that it has stopped, give her the blood and then discharge her. Will keep you posted and as always your prayers are appreciated!