Snuggles, clean gown and movie watching...

UPDATE: So much for no news is good news!! The gerneral surgery just left and said that they see air leaking out in her belly. To be honest I can't quote you exactly what they said except for it shouldn't be there. I told them a little about her history like always have so much air and they are going to do more xrays tonight. They both remembered her from when she was here so sick in April with her bowels issues. They also said that I would be seeing the surgeon who actually did Annabel's bowel resection back in June. He was such a nice doctor who never even questioned the fact that she was Trisomy 18. This is it I am going snuggle until xrays and then return for more...

Update #2: She is now NPO, I think this is just in case and i feel sure after the xrays we will be able to have our feeding. This came from the 3rd general surgeon that just left. My opinion is she is feeling better than last night so hard to believe anything is wrong.

Look who is here!!!

This is my sissy, Colette...

Am I seeing double, oh no this is Carly...


Fresh, clean and comfy...


This will be short so I can hold her again. She is still very sore but that is to be expected after laying flat since Friday morning. Then I asked for a big girls bed so I can lay and watch movies or TV with her. Still no reports from lab or xrays, I am assuming no news is good news. She tolerated the morphine better today and slept almost the entire day. Mel brought Carly and Colette to the hospital and they brought Tara back home as she needs to return to work. Carly and Colette actually got a smile from her today when she woke and saw them by her bed. Still praying all goes well and we can be discharged tomorrow as was originally planned. I will update tomorrow and thanks so much!

Surgeon just left...

He just didn't seem as concerned as the doctor this morning. He said she is reactive to the touch, which is good and also the incision is dry, which means no leaking of spinal fluids. Yeah....
He is the one who calls the shots and says that we can try tol hold her at 3:00 so yes I will be snuggling at 3:01. Hopefully will try to take a picture of her, not me of course! My last post sounded way too negative, (I actually reread quickly) so I am glad the surgeon came by to give his take. She will still need the xrays on her chest and tummy. Most everyone that sees her xrays think something is up. I told him that maybe they could look at her past xrays because she just has very loopy, stretched out bowel loops that fill easily with way too much air that she can't release.

The following is a poem, author unknown that I read on this blog: amazingsydneygrace.blogspot.com Please if you have time drop over to see this precious little one who is 3 days old with Trisomy 18. She is doing as well as can be expected but is in need of our prayers.


Once upon a special day in Heaven up above , The tiniest souls sat at God's feet, surrounded by his love. The time was coming, very soon, God said, do not be scared. Your family awaits your arrival, now let us get prepared. And so God looked upon these souls, in mute consideration. He knew the life each one would live, He weighed each situation.

The souls chatted amongst themselves, and wondered who they'd be. They knew the day grew closer; soon, they'd meet their family. How would you like to change the world? God asked each soul in fun. The chance to change a soul, a heart, is held by only one. I'm going to make the world laugh, one soul said with a smile, for laughter heals a broken heart, and helps us through each trial. Then take with you the brightest smile, and share your laughter well. The soul thanked God immensely, and down to earth he fell.

And I'll remind the world to sing, a sweet little soul told the Lord. I have the gift of a beautiful voice; I can hit every note and every chord. You’ll have the gift of music then, a voice, lovely and strong. Share your gift with others, and let them hear your song.

I will show compassion, the next little soul raised her hand. Some people only need a friend, someone to understand. Compassion is a good thing, God said with much delight. To you, I will give mercy. You'll perceive wrong from right. And so each soul shared every thought, their plans, their hopes, their dreams. And God explained that life, it is, much harder than it seems. And as each soul began to leave in a scurry of laughter and fun.

Heaven became quiet and still, for left was only one. Come sit with me my little child, God said with just a sigh. Do you know how many you will touch, in a world left wondering why? Before your life comes to an end, you will know much strife, but you'll teach those who know you, to cherish the smallest things in life. And some may only know you through a simple photograph, they'll never hold you in their arms, or memorize your laugh. Some may only know you through the words they read each day, but you'll do something wonderful, you'll make them stop and pray. The tiniest soul raised her head up, to touch God's firm, strong hand. Father, I am ready for, the life that you have planned. And I will do the best I can without a word or deed. For you Lord, are the planter, and I will be your seed. She could already hear many praying, and although they had not seen her face, they were praying for her safe arrival, they were asking for mercy and grace. What talent do I leave with Lord? What gift do you impart? All that you will need, God said, I've placed within your heart. And so God kissed this tiny child, knowing all that she would be, and whispered as he watched her go...You'll teach them . . . to love me.

- Author Unknown

Prayers, please...

Please keep praying!! Her little body is hurting all over. When the doctor came in this morning he agree there is too much pain since last night. He actually rolled her a bit to look at her back and she screamed and cried for a while. If anyone knows Annabel, it is so hard for her to cry out loud. Ok, yes it did break my heart! Last night after the doctor came by it was agreed it looked like she needed help to go to the bathroom and ordered medication for her tummy and said no more morphine since this slow her GI system. Well within about 2 hours she was much relieved for a couple more hours. She rested in a light sleep til early this morning. She is probably in more pain now from what we can tell than before. He ordered the morphine right away. She is still in pain at this time but we can't touch her. They said at the earliest tonight if we can hold her. They did labs and an abdominal x-ray. Neuro came back and said radiologist saw something on the x-ray so she needs to go down for a chest and more abdominal x-rays. He also said she could have more inflammation that necessary around her spine and maybe this could be the cause of the pain. I am still not giving up on holding her today. She needs it and so does her mommy. Yes, I do realize this isn't just about me! Also hoping that she will feel like a picture tonight! Thank you for your thoughts and prayers....