Any input welcome...CPAP v. Bi-PAP

I want to begin by saying again and again that Annabel is here because of so many prayers being offered up on her behalf. It is looking like this c-diff bacteria is being taken care of by this antibiotic. We are still waiting for the orders to be written for a type of diluted formula that her tummy will handle and see if she tolerate this.

They are having to change her from the CPAP to the Bi-Pap. We knew that this could happen eventually just not being this soon. In reviewing her readings from yesterday and last night she seems to be having more central apenea than initially thought. Her repirations become very low then this makes the saturation levels drop. She has begun to do this more during the day even without being in a deep sleep. You cannot judge these numbers as acurately when she is awake due to her moving her foot which is where the lead is. From what I understand the CPAP forces the air in at a certain level. They have moved her level twice already and had to add oxygen to that and she still had too many episodes. This is what may be inacurate, the Bi-Pap will have two levels,one that is set to forces the air in and then one that helps the air out.
I guess I am asking that if anyone has any knowledge of a child that was on C-PAP moved to Bi-PAP that they would give me information on how their child is doing. You can either comment on here or you can email me listed on the sidebar of the blog.

There has been some talk of other reasons for what could be happening if this doesn't seem to work. I will wait to share those after it is decided how she does on the BiPap the next few days.

A Big Surprise for Annabel...

We thought Sunday was just going to be a lazy day hanging out with myself and Annabel. Thank goodness for Annabel she had a break from her mommy! Ms. Ann, her teacher and Ms. Linda, her OT from school drove to Houston to see her. What a surprise! Annabel shared many of her smiles with them. Again,to Ms.Ann, Ms. Lisa and Ms. Alice for Annabel's balloons that are as big as her and to Ms. Linda for her 3 new books.



My prayer for now that this bug is under control is that we become stable with the CPAP machine. The goal was to go home with as few alarms as possible and with no oxygen added if possible. Yesterday when awake she did well. It is when she sleeps that her respiratory and her oxygen level decrease more than they want. I have had some of the best nurses, but last night she was just like a momma to Annabel and myself. They had to ultrasound her bladder every 3 hours due to her holding so much urine. So she was insistent that I sleep and she take care of the cathing every 3 hours. She also responded to the alarms and I didn't need to listen to make sure her levels were returning where they wanted them to be. When leaving this morning she mentioned she would be back tonight and should have Annabel as her patient. Thank you, Jesus.

Sunday afternoon...

Just wanted everyone to see how Annabel is spending her Sunday afternoon. She took a good nap this morning, but couldn't keep her sats up so they had to do the CPAP thing. Goal is to go home and only use this during the nights. They began Pedialyte this morning at 8:00 with 5cc and will up 5cc every 3 hours. She needs to tolerate these so she can begin the pediasure. I think their goal is 40cc at a time.
She had her bath and is just hanging out watching her DVD's.